Ischemic Cholangiopathy following liver transplant.

[KateG94]

Hi All,

I wonder if anyone on this site has been diagnosed or had a family member/friend receive a diagnosis or ischemic changiopathy following liver transplant surgery?

I received an urgent transplant in December 2022 and recovered well up until April/May when the problems started. Symptoms have gradually gotten worse and I feel at my wits end- I was however accepted on the waiting list for a regraft September this year of which I am truly grateful but obviously these things take time.

I would be so appreciative if someone could provide any advice/support/encouragement. Whilst I have a fantastic support network, I find it always helps when people can sort of relate and share their personal stories.

Thank you

[Yellowsydney]

Hi, sorry I cannot directly answer your question but I do know of people that have been in your situation.If you use Facebook please feel free to join our friendly and knowledgeable Facebook group called 'liver transplant support uk ', thousands of people that have been in your situation or similar.

Hilary ❤

[Pie-eater]

I had problems with both my hepatic artery and bile duct following a transplant in Dec 22. They wanted to concentrate on gutting the bile duct right first which hopefully has now been achieved. No one has mentioned the hepatic artery for about a year so I don’t know if there’s still a problem or not, I think they hoped it would sort itself out once the bile duct was cured. I hope you go on ok.