Hi there everyone ☺️Just wondered if anyone else had the same experience I had.
I've been told I have PBC and after a recent fibroscan (which was painless) was told I may have fibrosis so was sent for another ultrasound to check.
I know I have fat on my liver so I'm not worried to hear about that but I fins ultrasounds to be really painful. So much so that I had to just squeeze my fists and grin and bear it and it was horrendous.
I told the person doing the scan it wasn't their fault as it was like this the last time I had it done and he assured me he wasn't pressing too hard.
It took weeks to get over the last ultrasound and felt like my liver was bruised. Is this normal and has it happend to anyone else?
Thanks for taking the time to read my post 💖
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Ochredreams
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Last ultrasound was over a year ago and I felt uncomfortable for a few weeks after. The other side of my ribs was sore too so can't think what is causing it. I may just have sensitive bones 🤣
I've found it a bit uncomfortable during ultrasounds whe they press really hard, but this doesn't last after they remove the scanning device. As an aside, did the regular ultrasound find any fibrosis? I wasn't aware that a standard ultrasound would show fibrosis, but that's good to know if it does.
Thanks Terry,I think the first ultrasound showed fat but not much else and the woman doing it was a bit mean and told me that I needed to loose weight, which I do but knowing she isn't a doctor I should have complained as it wasn't her place to say. But I had an MRI too and would have thought that would have shown fibrosis?
I am still going through tests and not sure if they are holding off doing a biopsy. I don't have an appointment till next year so will probably wait till then.
Interesting. I've recently has a US on August 13 and it said no change from previous US of December 2023, which was grade 1 mild fatty liver. The report also said "The sonographic appearance if the liver does not suggest cirrhosis." My liver enzymes blood tests were all normal as well, yet the internist I sawat the end of August still wants me to do a fibroscan because he says it will show a more in-depth view on the overall health of my liver. It's scheduled for this Tueday. Wish me luck. 🤞
I was actually just think about this as your post came up, I have my US next week.
I’ve had many US for different things over the years. The one I had was very painful. I do think the person doing it was pushing due to finding a polyp on my gall bladder tjough and trying to get better angles?
Sorry you had a painful experience, I think some folks just get more sensitive than others. I hope your next ultrasound is not uncomfortable for you ☺️
Hi, I find ultrasounds quite painful. Apparently it can be down to gallstones, which I have or the other one is air within your body which they can move out of the way with the US probe, which was what I had last time. And yes, fist clenching pain. Do you know what they were scanning for? Have you had any results yet?
Last US, the sonographer was apparently looking for liver cancer which meant moving air to get a clearer image.
Sorry you also find ultrasounds painful, I'm starting to wonder if I'm just sensitive in my rib area as I've had US on my pelvic area a few times and apart from it being uncomfortable I was never in pain afterwards. Apparently they were looking for fibrosis but not sure when I get the results back. I usually get a call every 6 months to check on blood results etc but never seen anyone in person. Like most people, I feel like we just get left to research our conditions ourselves 😔
good morning. So what meds have they prescribed for PBC. Very unlikely ultra sound will show fibrosis. Would need a fibro scan. Wouldn’t be happy waiting a year to see someone. Who is the someone. PBC is serious.
I love your name research freak, I to love to research things ☺️I'm not on any medications as yet as my ALP is normal but creeping up slowly and I'm told I'm at the beginning stages so I'm ok. I think other things are going on but not sure if I'm getting tested for anything else. I've had 2 fibroscans and that's when they said it looked like I have fibrosis but they needed an US to confirm. I have no clue what the correct process is as I have never seen a consultant in person. I can speak to the liver nurses any time but don't have any questions to ask them. For now I will just have to wait to see what happens!
frightening. You need a specialist to diagnose you and see you regularly, especially with PBC as it can have many nasty side effects. I see specialist every 3 x 6. Months. Barrages of tests monthly bloods. I personally would have the biopsy as it is very useful which hospital do you attend.
I don’t understand. My hepatologist is fantastic and really looks after me. Specialist liver professor is brought in as and well. But hep man orders all tests. He also explains everything. He took blood and 27 different tests carried out. Thorough. Mind you I’m at one of the top liver transplant hospitals in Europe. Freeman in Newcastle. Your hospital is ? . You can request where you want to be treated.
Hi, I have had three fibro scan that say no chirrosis ,yet my Ct scan shows that my liver is small & shriveled at one side ,therefore hepetology saying chirrosis ? Because its different He wants to do a biopsy which I'm unsure of ! & after reading a article on here where even his biopsy wasn't conclusive! I'm so scared x
It's a scary time when you don't have all the answers but at least your healthcare team are doing all the tests they can. I hope you find out for sure soon and hopefully it will give you some peace Yvonne ❤️
Sorry to hear of your experience. I have had more ultrasounds than I care to count. And I’ve never had one, that was painful. I have felt pressure from the equipment, but never Pain.
Uh, sorry that sounds awful! I have not had pain with either of my liver ultrasounds, and it didn't feel like they pushing hard. Also, I didn't get a (stage 1-2) fibrosis diagnosis until after the liver biopsy.
Sorry to hear of your fibrosis diagnosis, I hope you are coping well. Last time I spoke to the consultant he mentioned biopsy but I think they are doing loads of scans to see if they can get answers instead but at this point I'm going to ask them can I get a biopsy as it may finally answer all my questions. But who knows as I feel like I'm in limbo getting help wherever I can 😔
Hi Luke, ouchies a flare sounds terrible! Does it cause you pain regardless of the scan?I've had US on other body parts and not had any bother but I felt like my ribs were being stretched apart and now I have a few small bruises over my ribs. I spent the whole of the next day with a migraine and aching joints like I had the flu and it was awful. I feel like my body just doesn't respond well to being poked and prodded!🤣
All my bloods are raised bar ALP which is normal ATM but creeping up slowly with each blood test. I'm wondering if something else is going on too but I don't get any more feedback till January so will have to wait till next year to see what other scans I have in place! I'll do anything but an US again!
I guess if your bruised then maybe if was slightly rough, I’ve had several now and never had pain bar one when my levels were raised snd liver inflamed.
The pain got worse over several days until it was u bearable and I had to go AnE and was told ALT 1000 plus.
Hope your feeling better now.
If in any doubt just go to AnE, not worth the risk.
Oh no that sounds awful! Hope it doesn't happen again and they are all ok from now on. I will follow that advice if needed and make sure to look after yourself too 😎
I've had loads of US's but only one checking my heart was long and painful because of being on my side and my left arm out at an uncomfortable angle. Also the technician was a miserable fellow with no chat
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