Hi, I have just been dealt a bit of a blow, following my MRI where I was expecting to hear news as to whether my bile stent needs to be replaced (or not) I find I have ischemic cholangiopathy such that the bile duct stem is not the problem, and the I.C. is untreatable, so transplant #2 is possibly the next step..... I am 11 months post transplant, feeling rather well, and still maintaining a very positive outlook, but quite shocked at what I have just found out.
Seeking others who may have been in similar situation, interested to hear others stories, I know each liver journey is an individual journey! but we all share a number of issues, and hence my desire to share others experiences! anyone out there ?
Charlie. Male, 61, PBC, suffered fatigue and H.E. really strongly pre transplant in Nov 14 feeling well now, awaiting for I.C. to start to mix things up a bit!