update: had my TP last Thursday all well... - British Liver Trust

British Liver Trust

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update

lonmallin50 profile image
20 Replies

had my TP last Thursday all well be doing little walks taking it slow told me today I can go home tomorrow all done in 7 days in and out can’t thank the staff enough at Birmingham QE and the nhs my journey from the start to this has been 3 to 4 years and have been looked after really good any one waiting list for TP list they nothing to worry about it all goes so smoothly your out before you no it

Thanks Lon

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lonmallin50 profile image
lonmallin50
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20 Replies
Richard-Allen profile image
Richard-Allen

Well Done Lon, the only advice I'll offer now is to be wary of a post-transplant mental health condition known as "Survivor's Guilt". This can often happen especailly if the need for a transplant was due to alcohol abuse.

Some people (like I did) spent days on the ward feeling tearful and very emotional. Other's can experience a condition simular to PTSD even some six months post-transplant. While other's end up having no emotional problems at all.

It took me ove ten months to deal with my emotional issues. It's only when I read a book by Prof Ed Bullmore, entiteld "The Inflamed Mind" that I realised that the emotions I was feeling weren't so much of my own making, but were being caused by my immune system which was working on the surgical damage caused during to operation. Understanding this gave me a form of acceptance and the guilt was lifted.

I often refer people to a video as it has helped others in the past. It’s easy to understand how the cytokines can cross over the blood-brain barrier and alter a person's mood and drive this feeling of guilt.

Good Luck

Richard

Kristian profile image
Kristian

Great news 😊. Enjoy and make the most of it. Not sure if you are on any of the Birmingham Liver Transplant Facebook groups, but if not they're worth joining. Who knows, you may like this exercise lark and want to perhaps try out the Transplant Games, lol. But all in good time. Take it slow, build up gradually and just enjoy the process.

lonmallin50 profile image
lonmallin50 in reply to Kristian

Thank you

Millie09 profile image
Millie09

👋 hi lonmallin Great news to hear your still doing well on your post TP recovery .

I too am under the care of the QEHB liver unit ( not on the TP list though)

I've always received excellent care and advice from whoever i see .

Take it easy !! As I'm sure you will

I wish you as always a very speedy safe recovery

Linda

lonmallin50 profile image
lonmallin50 in reply to Millie09

Thank you

Mango5cm profile image
Mango5cm

I’m so pleased for you - I’ve followed your posts and I was wondering how you were . Hope everything continues to go well and you can start living a better life now - I loved your thoughts about the donor and I’m sure her family will be proud that it’s given you a new life . Best wishes Carol x

lonmallin50 profile image
lonmallin50 in reply to Mango5cm

Thanks you

AyrshireK profile image
AyrshireK

Congratulations, glad things have gone so smoothly thus far and long may that continue, all the best for a bright future.

Katie

lonmallin50 profile image
lonmallin50 in reply to AyrshireK

Thank you

lonmallin50 profile image
lonmallin50 in reply to AyrshireK

thank you

Yellowsydney profile image
Yellowsydney

Congratulations now take it easy, it generally takes a year to recover from transplant surgery don't try to rush your recovery or you could end up with problems. Hope you have an uncomplicated recovery. Eat well and drunk lots of fluids to flush the drugs through your kidneys.If you use Facebook please feel free to join our friendly and knowledgeable Facebook group called liver transplant support uk, thousands of people that have been in your situation.

Hilary 💚

Dogbot profile image
Dogbot

Congratulations I’ve just had my 6 months post a few bumps in the road to recovery some from my own fault thinking I’m better than I am and doing to much. Please don’t fall into that just take it easy and recover. Enjoy your new life 👍.

Stay safe All

Dogbot 🐶🌈Dave

Lantana100 profile image
Lantana100

Really good to get this update, I’m so pleased to hear you are doing so well and your post will be such a support for those awaiting transplant who might be a bit apprehensive about it all. Well done the wonderful NHS too.

lonmallin50 profile image
lonmallin50 in reply to Lantana100

Thank you

ScoobyPoodle1 profile image
ScoobyPoodle1

Best wishes to you, lonmallin50, take your time and I pray you have a full and problem free recovery.

lonmallin50 profile image
lonmallin50 in reply to ScoobyPoodle1

Thank you

Readlots profile image
Readlots

congratulations!

Shep666 profile image
Shep666

hi QE fan club here too.

Recent transplant survivor 😂

It is a gift so enjoy.

Everyone's journey is not the same - but can I welcome you to very select band of brothers and sisters 😍

Your new journey is just begining please emrace it and enjoy it. 👍👍

lonmallin50 profile image
lonmallin50 in reply to Shep666

Thank you

Segy profile image
Segy

Keep going me duck!positive thinking n that🤔🤪🙃🙂😉😊😁🫡

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