Feeling very low

[KulG20]

we’ll it’s three years post big variceal bleed but starting to feel very low. Just get very tired now and am trying to stay motivated. I should be happy for every day having survived near death in 2019. It just starts to wear you down, consults and endless blood tests. I now have an inguinal hernia so a different visit to a different hospital. Seeing my hepatolgist on Thursday to discuss suitability for surgery. Hospital’s!!! Want to go on a nice holiday but flight risk is too high

[BritishLiverTrust5 Moderator British Liver Trust]

Dear KulG20

If you are in the UK and would find it useful to talk things over, our nurse-led helpline is open Monday to Friday from 9am to 3pm on 0800 652 7330 (excluding bank holidays)

Best wishes

British Liver Trust

[Patal]

go on holiday it does wonders for you . It has made me feel a whole lot better. Flying was not a a problem

[OMBRAMAIFU]

I think one of the things that get you down IS the endless tests and appointments - your life revolves around them and it's an effort to attend them also. When you get an additional problem it can feel like the last straw.

Have you discussed the possibility of a flight with your consultant? Could you have a domestic holiday instead - just to get away from the 'everyday' worries and routines?

My sympathies - best wishes to you.

[Readlots]

The time of year doesn’t help low mood. I always feel better when I can get out in the garden. We’ve had lovely breaks in Kent and Northumbria. Just a change of venue and a nice view can help when you haven’t got energy. Hang in there

[oap74]

I think their are many like us who try to put a brave face on but as you say it is an endless merry go round, I struggle to walk now I’m having a stent fitted to get the blood flowing in to my legs hopefully next week if it isn’t cancelled again, putting a lot of faith into the opportunity to be able to walk every day again. Here’s hoping and good luck to all who are in the same boat. All the best

[KulG20]

thanks all

The dark early nights really don’t help too

Good and bad days I guess

[redpoint72 in reply to KulG20]

Hello there....I'm just the dam same.....feel so despondent at the moment, again waiting for blood results, also waiting for blood results from cardiology....as fast as you seem to sort 1 thing out.....something else appears!!!!!. Still fluids getting worse on my lower legs, despite walking several miles aday.....I know the liver nurses are great, but so overworked...I dont like to put pressure on them. Even if I could fly,which i can't, as consultant says to risky,as still have some small varices,. Even to see my brother in the orkney islands. I couldn't afford it!!!!. As you say darker nights don't help....yes just a few down days,and were all in it together ...this forum is great though......right,moan over 😆....Chin up everyone.

My best.chris

[Roy1955]

First rule in life when depression hits you.It's OK not to feel OK!

I am at a low point as well but working through it.

Did you get the transplant you mentioned in your older posts?

[KulG20]

hi Roy

Still waiting