update

[Lippy42]

Morning all just an update on my hubby .He went to QE birmingham for his 3 day transplant assessment the result being Because of muscle waste he needs to build his strength they say his recovery would be slow as he not strong enough 😒hes a ukeld 60 it was 57 so my mission is to get him stronger we go back in 6weeks just hope 6 weeks will see improvement to get him on the list .So we off to the coast for a weeks break to clear our heads different scenery and good walks down the beach ⛱🌞 for once lady luck on our side the weather looks great 👍..wishing you all a lovely weekend and any battles your facing staystrong 💪 as I say to hubby "we can do this

[Kristian]

Good luck to you both and enjoy your holiday 😊

[Millie09]

wishing you a lovely break away .. weather is going to be glorious 🙌.. but I itch 😫 😕 in the sun 🌞 these days lol..Fingers crossed for your next QE trip, im under QE liver unit myself.

Best wishes linda x

[Aotea2012]

Enjoy the sun...take it easy and good luck in 6 weeks time. 😎

[Rshc]

I hope they have given you some tips on how to build him up. It does always seem strange to me that you have to be really ill but not so ill in order to have a transplant. At least you know what you need to work on and hopefully in 6 weeks time he will be listed

[Lippy42 in reply to Rshc]

He on extra renapro for protein lots if walking and exercise getting up and down out of chair without using hands and pushing from a wall standing also got exercise peddles and hand weights fingers crossed we got a good routine going xx

[Ewife in reply to Rshc]

I agree, it's such a difficult balance for medics because it is classed as a life saving operation, so they will only do it to save lives. My husband quite a high ukeld score but because he has remained stable at that for over a year, they are undecided whether he needs the life saving bit .........do I wish him to get worse? Or fear more of him staying this sick forever?? I can't decide ........all I can say is I'm glad I don't have to make the final decision!

[kensimmons]

A vacation like this might be just what he needs. Do lots of nice walks in the fresh air. Enjoy!

[Louby1954]

Enjoy the sunshine 🌞😎 & the lovely beach walks. Take care not to over do it. Easy done xx

[Flowergirl24]

You can do it. I did. I had my transplant at the QE 2 years ago. My UKELD was 61 and I was very malnourished to the point of having an NJ feeding tube as my muscles started to waste away. I’d gone from a healthy 5.4 woman to a tiny frame down to under 6 stone and my bilirubin was over 500. It was also during lockdown. I lived on porridge, Renapro shots and small snacks. I would also eat carbs just before going to sleep ie a banana (as much as I could or a slice of bread as this gave my body something to munch on during the night!

Through sheer determination, I went for a walk every day. It took longer to get ready than the waking! I was in a wheel chair but once out used it was a walking aid for the small steps. Like you, it was bliss being outside in the sun. Never give up, eat when hungry and keep the walking up. Wishing you and your husband all the best on his journey. 🤞💪