NASH Trial

[Robboref]

Hi everyone, 3 years since my last post so I thought I would update you all. So no real changes in how I feel ( still refereeing football) and feeling well. But each 6 month check up I’m told that the fibrosis and steatosis are getting slightly worse so I was recommended to apply for a current clinical trial that was looking for candidates. I applied and after a rigorous month of blood tests, ecg, mri, biopsy and bone dexa scan I was accepted. So here we go 4 years of pills every day( may be placebo) . Bloods every 4 weeks, mri, bone scan and biopsy every year to see progression. Thank you for reading….

[Yellowsydney]

Good luck with the trial and thank you, if people don't take part in trials there would be no advancement in medical treatment❤

[Robboref in reply to Yellowsydney]

Thanks..

[Hidden]

Good luck with the trial and do keep us posted!

Trust9

[Robboref in reply to Hidden]

Will do…

[Tia2021]

Good luck with your trial, x

[Robboref in reply to Tia2021]

Thanks..

[Wordesley]

I volunteered for a clinical trial for NAFLD/NASH and had a fibroscan in February. The results were not good and I signed the paperwork for the NASH trial. However, the blood tests results were ok so I was not actually eligible for the trial. I was told to see my GP for a referral and that has been an uphill struggle, but have persevered and now waiting for a hepatology appointment (about 53 weeks in my area). If I had not volunteered I would not have known my liver was suffering. Good luck with the trial.

[Robboref in reply to Wordesley]

Thanks Wordesley. It sounds to me that your liver is not too bad for the trial which is a good thing I hope. I’m due my Nash trial 12 month biopsy in a couple of weeks so it will be interesting to see if there are any changes. I know it’s a long wait to see a specialist but hang in there I’m sure everything will be ok..

[Wordesley in reply to Robboref]

Thanks, I'm hoping that it's all going to pan out ok...the fibroscan showed CAP 328 and kpa 20.3 which puts me at F4 so making changes while I wait for the appointment (apparently I am now on a waiting list for an initial outpatients appt).

Edited to add: had an appointment letter in post this morning..... 4th OCTOBER for a TELEPHONE appointment....so just a re-iteration of symptoms and fibroscan result, no examination or anything.

[Robboref in reply to Wordesley]

My CAP was 320 on my first fibroscan approx 4 years ago and they told me then it would come down quickly with the right diet. My problem is I love the wrong foods but I do try…

[Wordesley in reply to Robboref]

I'm usually conscious of diet as my husband is type 2 diabetic so don't eat much processed food at all or big meals, but my guilty pleasure is cheese....pass the Wensleydale Grommit 😂

[Robboref in reply to Wordesley]

I’ve been diagnosed with type 2 diabetes in the last 2 years as well but I think it’s liver and pancreas related. My doctor says I’m a strange case because I’m fit, not overweight, still refereeing football at my age..lol.. I’m with you on the cheese thing though…love it..