Nash and PBC

I have PBC, Portal hypertension, Grade 1 esophageal varices, High blood pressure, Type 2 Diabetes, I have extensive stage 4 Cirrhosis, and I have Nash my score was 6 out of 8. I had a Transjugular biopsy so we know all this for sure. Is there somebody who has all this that has lived a long time? Everything I've read says 1-3 years life expectancy without transplant. Thanks for any help.

[4pjx__]

Well, I guess nobody, including myself have an answer for you. 😞

[4pjx__ in reply to 4pjx__]

I think it looks like you should start talking to your hepatologist about how to get on a transplant list. People with PBC who have had transplants say they feel so much better. It might not be as bad as you think. You are still pretty young aren't you? You could get a transplant and live out your life quite happily.

Sending prayers.

Pam

[Hidden in reply to 4pjx__]

I'm 53. Thank you for your prayers!!

[4pjx__ in reply to Hidden]

How are you doing? Did they give you a meld score? I have stage 3 severe fibrosis. They said my meld score was 10. Apparently the scoring goes from 6 to 40. I have to go 2x a year for scans to check for liver cancer. I have one

Stay positive,

Pam

[Hidden in reply to 4pjx__]

The ususal symptoms, right upper pain, exhaustion, joint pain. I'll have to ask about the meld score I don't know it. I go 4 times a year because I have pbc and nash which both can cause cancer. I will pray for you. Thank you for replying.

[Hidden]

Hi

You are all in my prayers, I think that everyone on here are fantastic xxxx