P/T information

[Shaunwood]

3yrs yday but i have a problem maybe someone out there can advise me my scar is still pulling &seems swollen but no pain also am most of the time constipated with swollen stomach I'm tired alot &have little energy i thought after transplant i would feel better but it seems i was wrong i haven't seen my consultant since jan 2019 he phones but i can't explain over phone but he did say my scar line should of healed by now I'm looking like a 9mth pregnant woman anyone any thoughts on this xxx

[AyrshireK]

You need to be seen, try and get an appointment with your GP in the first instance especially to assess your tummy and wound. There are things that can happen with your wound in the way of incisional hernia's plus it's possible that things are not going so great and the liver needs checked out again. I would have thought that someone post transplant would have been physically seen in that space of time, two year plus gap in someone only three years p/t doesn't seem adequate.When did you last have liver bloods done?

You need to be physically seen and checked - a.s.a.p.

Katie

[Shaunwood in reply to AyrshireK]

Thanks Katie for ur reply i have my bloods done every 3mths &consultant says they r fine next 1 July but i really don't know how 2 explain all the things that's wrong on the phone really i could do with seeing him but with all this pandemic i don't no wen it will b hope u r keeping well xxx

[Kristian]

Hi Shaunwood,

As Katie said, it is worth going to see your gp, especially if you can't get to speak to your consultant directly. They will at least examine you and if needed can speak to your hospital consultant for advice or if they have any concerns. Should they do so I am sure they'll be happy to see you face to face too.

Thats probably the best route to follow for now. Good luck.

[Shaunwood in reply to Kristian]

Nice to here from u hope u r well thanks for advice thought after all this time i would feel ok but how wrong can i b anyway will get intouch with QE &c how i get on take Care xxx

[Yellowsydney]

Contact your coordinators either by phone or email and just tell them what you have said above, ask for a face to face consultation, GP will just refer you to hospital, I get sent to a&e if I sneeze. 4 years post here, coordinators are really good and that's what they are there for.I

Hope you feel better soon

Hilary

[Shaunwood in reply to Yellowsydney]

Thanks for your advice can't get 2 c my doc but will take ur advice &get intouch with liver nurse hope ur well &have not had problems take Care