Ollybobs

[Ollybobs]

Thank you for accepting me , i was diagnosed with autoimmune hepatitis nearly 4 years ago its been a rollercoaster they are trying to wean me off the steroids but everytime my alt rises but upto now fingers crossed its behaving and my onset diabetes caused by the steriods is coming down too

[Tia2021]

Welcome, everyone is so supportive in this group, fingers crossed that all will continue to go the right way for you x

[Ollybobs in reply to Tia2021]

Thank you Tia

[Hidden]

Welcome to the forum, I am sure our forum members will share their experiences.

I have included a link to our website information regarding Auto Immune Hepatitis (AIH)

britishlivertrust.org.uk/in...

Trust9

[joeburger]

Hi and welcome, I've been on and off steroids since my tp two years ago at the end of the month more on than off and like you every time they try to reduce them my liver isn't happy. I'm reducing my dose at the moment but won't know how it's going until I go for blood tests in three weeks. Like you keeping my fingers crossed. Hope everything goes the right way for you.

Lesley

[Ollybobs in reply to joeburger]

Yes fingers crossed for us both, when i got to 5mg my local doctor didnt prescribed me 1mg i was stopped at 5mg ,the aches and pains was horrendous did you suffer like that

[joeburger in reply to Ollybobs]

No I was tapered off at 2.5mg for a week then every other day for a week, you shouldn't have just been stopped like that. I'm currently taking 5 mg but have to go for bloods week after to see if my liver is happy 🤞 they keep mentioning biopsy.

[AyrshireK]

Are you on an immune suppressant too Ollybobs?

[Ollybobs in reply to AyrshireK]

Sorry for the late reply ,im on azathioprine, taculimus and prednisolone, they are trying to wean me off the prednisone this is the 2nd attempt and fingers crossed my alts wont raise as it stands my alts are 34 which is good for me at the moment ,just that the prednisone has caused me to be a diabetic

[AyrshireK in reply to Ollybobs]

What dose do they get you down to before your ALT rises again? Some folks end up not being able to come off them altogether - my hubby is on 5mg a day maintainance dose just to deal with any blips in liver bloods. He was described as pre-diabetic, maybe a combination of pred and possibly cirrhosis induced in his case.

Katie

[exy21]

I'm on Azathioprine for AIH. Steroids as and when my levels increase to bring them back down

[Ollybobs in reply to exy21]

Im on azathioprine, taculimus and prednisolone this is my 2nd attempt to be weaned off prednisone my alts are 34 at the moment thats good for me, just that prednisone has caused me to be a diabetic which hopefully with the prednisone being reduced will bring my diabetes down