Hot and cold sweats

[TBSW]

I'm 6 MTHS post transplant, and I've been suffering with hot and cold episodes for weeks now. It trivialises them to call them flushes, as they are very debilitating. My body gets extremely hot to the point my husband says I'm as hot as a radiator., I don't have a temperature though. Also at the same time my head feels like it's going to explode, I also get a headache at the same time. Then I'll go cold. They happen all day and night, seriously affecting my sleep. I'm covering up and uncovering all the time. Has anyone else had this experience and is it something to worry about. Thank you

[Hidden]

Hi Tbsw, I can relate to that as well only I don't get the cold bit or im not post transplant but have Cirrhosis. Its getting very depressing to be honest as I seem to sweat profusely all the time something that's really getting me down. I have spoke to my Gp and they have put me on Propranalol 40mg 3 times a day and it makes no difference at all, im even thinking of going down the botox route as I've heard that Is a good option but don't fancy that to be honest. Like yourself im at a loss of what to do its embarrassing and in turn I get paranoid then anxious and its a vicious circle 😔.

[TBSW in reply to Hidden]

That sounds awful, and I think unusual with cirrhosis as your normally cold all the time. I hope you are pretty stable, and sent yet at the decompensated stage.

[Yellowsydney]

Hi I'm 31/2 years post I get really got flushes, covers constantly of, live in shorts and t shirt. Side effect of tacrolimus.

[Bikafella]

Hi, this sounds very unpleasant. You must inform your liver team for advice on this as it sounds to be badly affecting your quality of life and possibly something that you never had before the transplant.

[Richard-Allen]

This is sometimes caused by post-transplant medication. Steroids can cause some people to have hot and cold flushes.

Speak to your transplant coordinators about this. I think most people are normally taken off the steroids at six months, if not sooner. I would still speak to the coordinators as some of the other drugs your taking could need tweaking just to stabilise your condition.

It should also be remembered that the liver carries out over 500 different functions all the time. It is therefore engaged in so many activities that the energy it creates warms the blood passing through it which helps maintain the body’s temperature. So, the liver is part of the system that helps to maintain our body temperature.

There is a nice little BBC article here that some people might find interesting. I hope this helps: bbc.co.uk/bitesize/guides/z...

Good Luck.

Richard

[TBSW in reply to Richard-Allen]

Thank you, I've been off steroids for some months now. I've now spoken to my consultant and he's arranged for a CT scan.

[Hidden]

Hello,

As our forum members have suggested, I would strongly encourage you to speak with your transplant team or your GP.

Only they can diagnose your symptoms and provide any treatment to help.

I hope you feel better soon.

Trust9

[TBSW in reply to Hidden]

Thank you

[RodeoJoe]

I'm 6 years post transplant but remember I had a bad patch at about 6 months. As someone else suggested here it could be that you're reduced or stopped steroids. Obviously you need to talk to the post transplant team but if it's steroid withdrawal then it's normal. They might adjust how much you're taking.

[TBSW in reply to RodeoJoe]

Thank you

[fleurette]

Hi. I am now 3 months post transplant. I had the same thing a month ago,and (like Yellowsydney) it was a side effect of the anti rejection drug Tacrolimus.

They reduced the dose and symptoms disappeared.

Hope you get it sorted

[TBSW in reply to fleurette]

Thank you