Itching and cold with my pbc

[Shezza123]

It’s me again so fed up of itching again last few days as really got me down . I’m taking prescribed antihistamine now when it’s bad but not helped last few days . I’m covering my body in moisturising butter but it’s like it puts me in a cold sweat . I have got raised spots from where itching on arms and bruised red stretch like marks from scratching on legs and stomach . It’s just horrible !!!

[Cat19]

Hi this happens to me also, I use ice cubes run them over the itchy areas, also col shower helps numb the itchy area, wish you well

[Shezza123 in reply to Cat19]

Hi I’ve tried some cooling spray but don’t help , it’s horrible as I feel the cold anyway so when itching I can’t sleep as too cold from trying to keep cool . Wish you well too

Sherrie x

[Cat19 in reply to Shezza123]

Hi I do take my prescription antihistamine every day, but it’s good to keep the skin moist I get prescription large pump E 45 💖

[Shezza123 in reply to Cat19]

I use moisturiser everyday keep skin soft so not dry but just still itch . Hardly slept last night due to itching all night .

[Catlady1972]

Hi there other than the antihistamines I was told my one of my liver consultants to use calamine lotion or a cream called Eurex cream worked wonders for me and both can be bought over the counter. PLEASE CHECK WITH YOUR DOCTOR FIRST BEFORE USE. 👍🏼

[Shezza123 in reply to Catlady1972]

I’ve tried the Eurex cream , e45 itchy relief cream and another one but didn’t help , not tried calamine lotion so dec worth a go ,

Thank you xx

[Catlady1972 in reply to Shezza123]

The itching to me was the worst symptom of my liver disease so my heart goes out to you my lovely 💛 I hope the lotion works for you I would use them on alternative days and keep the cream and lotion in the fridge 🤞

[Shezza123 in reply to Catlady1972]

Thank you so much , it’s nice to have people to talk to that go through the same . X

[Hidden]

Hi

The itching is terrible, before my transplant I was the same.

I kept trying different things, the nurses at the QE2 use ice

I wish I could advise about a magic cure, I just kept trying every thing and anything some things worked for a while

My thoughts are with you

David

[Shezza123 in reply to Hidden]

Thank you for replying , I will keep trying .Take care x

[AyrshireK]

Are you on urso for your PBC? What about Fexofenadine - it's a prescribed anti-histimine and gets lots of positive comments on past 'itching' threads.

Katie

[Shezza123 in reply to AyrshireK]

Hi yes I’m on Urso and also on the fexofenadine but was told only take when itching then takes days for it to stop . Thank you for advice x

[sophiaS1980]

The only thing that helps itching is CeraVe for dry skin used by diabetics (bath wash) and after shower put some CeraVe itch relief moisturizing cream on body.I do this every night with some fresh lemon water (boil water with fresh lemon let stand for 3 min. it will help.

[Shezza123 in reply to sophiaS1980]

Thank you for your advice , I’m willing to try anything , spent so much on different creams etc .

[sophiaS1980 in reply to Shezza123]

I tried everything FINALLY CeraVe

[Roz22]

Do try Eurax cream I'm sure it will help

[sophiaS1980]

Are you cold all over or just extremities?

[Shezza123]

Cold all over like cold sweat

[A9KSY]

It's murder, the only thing that helped me was miracle cream from lush at least it may give you some relief.

[sasa]

I have PSC and take rifampicin and cholestyramine drinks for itch. It has stopped it for me and I had itching for years from head to toe. I used to heat a wheat bag and place on itchy parts for as long as I could stick the burning and it gave me temporary relief. Good luck x

[Hidden]

Hi

I'm sorry you are itching do much. I have to take fexofenadine 180mg every morning which does seem to help. Hope you find something that helps very soon

Love and hugs Lynne xxxx ❤️💜

[Shezza123 in reply to Hidden]

Hi I been prescribed that but told only take when itch so stops for bit then starts again vicious circle so I’ve decided I’m going to take everyday see if controls it .

Thank you sherrie x

[Hidden in reply to Shezza123]

Hi .

Yes, I take it every day, if I miss a dose I itch like crazy. Hope it works for you

Love and hugs Lynne xxxx ❤️💜