I'm a fairly new memeber to this forum and have made quite a few lovely lovely friends who have been very supportive. I've not yet come across anyone who's been diagnosed with non acholic PBC which is known as Primary Bilary Cirrohosis for which my GP and Special Nursing Specialist have indicated I may have !
Over the last few days my symptoms has increased, my itchy skin has returned, aching muscels in my arms and legs, more discomfort under my ribs plus feeling hot and cold again. i feel ok as such but would love to chat with someone who has this type of liver disease ! I'm booked for fibroscan on tge 23rd of this monty but wont get results until 19th of March.
Would love to hear from anyone with PBC
Hi. Just wanted to say that you should be told your fibroscan results immediately. She/he won’t be able to discuss them as that will be done at your follow up appointment but the nurse doing the scan will tell you the score. (And if not, then ask).
Thank you so much LMor! I really do appreciate this information very much as I'm currently in the process of booking myself on numerous training courses which I was delaying! I know you mentioned that the full results would come from my consultant which I do understand, but knowing some kind of result before the 19th of March will help towards my future decisions.
Thank you so much.