Well is it or isn't it?

Dear Friends

About 10 days ago I had a weird 4 days! It started with feeling quite poorly which came on from totally out of the blue at around 5 30pm ending up with me going to bed! The following 3 days I had no cold, cough or sickness of any kind but an ongoing temperature of between 38.5 and 38.6. On the 5th day my temperature went back to normal again which was an unexplained weird episode as it was like nothing I'd had before.

Then three days ago my old symptoms of feeling extremely cold, I mean cold came back, plus the itchy skin, extreme tiredness, a very dry throat along with the return of tinnitus!

Then today I decided to play a game of chess with hubby after being to the gym ....and guess what ...the heating was on full blast and there was I fully dressed with a thick blanket wrapped around my shoulders whilst playing two games of chess! The coldness continued until around midnight. Would you think this is normal?

I'm now debating on whether to use one of my 4 blood test forms supplied by my consultant or wait to see if the symptoms progress further ......Emmmm

I must say this unknown autoimmune disease is driving me nuts with these blummin weird flare ups! I've now re started to log every symptom for discussion with my GP or I may notify my consultant via email if they persist!

Apologises for sharing this latest up date with you but I'm feeling a bit .....grrrr about it all especially as my sleeping pattern has altered to being awake through the night again ....

Shropshire Lass

[Hidden]

Hi Trish

Please don't apologize!! You help everyone else so it's our turn to help you!! I think you should use one of your blood test forms while you have these symptoms, that way they might be able to pinpoint what's going on!! You never know!!

I've written everything down for drs in the morning and thus other Dr at Wythenshawe in the afternoon. Love and hugs Lynne xxxx

[Hidden in reply to Hidden]

Cheers Lynne ! I hear what your saying but I've got to that stage of uncertainty due to my latest bloods being almost normal! Well that's a lye, as my GGT had raised a few notches from the previous month so theatrically there was a minor change which my GP and consultant didnt seem concerned about, hence my hesitation now in using one of the blood test forms so soon!

[Hidden in reply to Hidden]

Yes, I understand that but as you are getting all these symptoms strike while the iron is hot!!! Xxxx

[Hidden in reply to Hidden]

I'll see ..... and before you say it...yes I'm stubborn!

Sweet dreams .... I'm praying you have some ear plugs 😁

[Hidden in reply to Hidden]

I will put my headphones on xxxx

[Hidden in reply to Hidden]

😊👍

[Hidden in reply to Hidden]

😊🤞 xxxx

[ThreeSmiles]

86.5?

[Hidden in reply to ThreeSmiles]

38.5 Celicus

Whoops I think I need sleep ...

[ThreeSmiles in reply to Hidden]

I would like to say “all the right” numbers “but not necessarily in the right order” but I can’t even do that! 😀.

[ThreeSmiles in reply to Hidden]

Good to see you’ve edited your post and recorded the edit so this conversation doesn’t look ridiculous 😀

[Hidden in reply to ThreeSmiles]

Well I knew you'd be on my case if I didn't 🤨👍

[Hidden in reply to ThreeSmiles]

Not radio but a mix of artists

[ThreeSmiles in reply to Hidden]

Radio - where?

Artists - no artists on here - well previous artists maybe but... 😀😀😀

[Hidden in reply to ThreeSmiles]

😅 I'm no artist!!! Not a chance 😂

[Hidden in reply to ThreeSmiles]

Lynne I think it's time for some sleep as your losing me plus I'm not thinking straight and screwing up numbers!

You can keep Miles company !'

[Hidden in reply to ThreeSmiles]

All we hear is Radio ga ga

Radio goo goo

Radio ga ga

All we hear is Radio ga ga

Radio blah blah. 😜

[Hidden in reply to ThreeSmiles]

101 4 F

[mattymoo33]

Hi lovely girl. I empathise with feeling freezing cold, but if your temp is getting worse, get yourself to GP. I'm the same, kept denying anything was wrong and hey ho...back in hospital!!☹️xx

[Wass71]

The exact same thing happened to my dad about 3 weeks ago. In all of the 50years my mum has been married to my dad she said she had never known him spend 3 consecutive days in bed. He had a temperature but no obvious cold or cough. He began to feel better after 3 days, then a few days later was sitting in the warm living room, and started shivering, visibly shaking. My mum was shocked and when she asked him what was wrong, he said he was freezing. She said he felt OK to touch, but his hands were very cold. He went to bed with a hot water bottle. In the morning he was OK.

Very, very strange. Maybe it's some odd virus, he seems OK now. Hope you're the same, and it doesn't return. On the subject of blood tests, my experience has been, in the early stages of PBC when I'd go to the hospital Dr and say I'd been worse feeling awful, my bloods would be just the same. On one occasion I'd actually had a pretty good (for me) few months, but the Dr said my bloods were worse!!! What I'm saying is, strangely it doesn't always show up in your bloods, so might be worth saving the forms, but letting Dr know??? Or, just use one to test this theory, you can always get more blood tests from gp if they are needed.

Hope you're feeling back to normal ASAP.

Wass

[Hidden]

This sounds like the time to use one of your bloods. The doctor gave for this sort of occasion, when things are abnormal so they can see what is going on. Get bloods done today,no question about it.

Take care

Angela x

[Hidden in reply to Hidden]

Hi Angel

Thank you for your lovely message. I've decided to go for bloods if the cold, tired and itchy feelings return later.

Hope things with you are ok ! You too take care in the meantime

Trish

[Hidden in reply to Hidden]

Thats good., glad you are going to get it done.

Still waiting to hear what happening with meds, last visit they said urso not working on me anymore going with my bloods. His secretary phoned again Friday, still no decision. Had my ultrasound thursday so unsure if he may be waiting for that before deciding.

Angela xx

[davianne]

No apologies needed Trish, so thanks for sharing.

You should document all your symptoms, and go back to your GP, and ask what tests can be done to determine what is causing it. If your last bloods were good, then why get them done so soon after the last lot?

I hope you get it sorted. It's way past the time when they should be giving you a positive diagnosis.

Take Care,

David

[Owlie]

Hope you are feeling better and it is just a virus x

[Hidden in reply to Owlie]

Hi Owlie

It doesn't feel like any virus but hey ho! I'm just going to carry on logging symptoms down for now!

Hope your doing ok!

Love Trish x

[Hidden]

Hi Trish,

Time to consider seeing the GP if yout temp remains high and lots of other symptoms....keep us posted

Trust1

[sunnysmile]

I will DM you Pocket x

[Bootandall]

Hope you feel better soon Trish!

[Hidden in reply to Bootandall]

Cheers Boot ! I'm pleased to say today's not a bad day which is good !' X