I posted here about a month ago, and got a lot of support. I’m posting again to see anything all of the real experts might have to say (lol.)
Dad came home just before Christmas. He was doing well enough. He didn’t need at home care, but he was much slower and weaker than ever before (he is 67, btw.) I thought we were in for another miraculous recovery, just like 2 years ago, when he had initially been hospitalized with decompensated cirrhosis and a MELD of 29.
Last Thursday night, he feinted and fell but managed to call me. I rushed to his house and called an ambulance. He had 3 bleeding varices and a host of other problems, which landed him in the ICU. Luckily, they were able to band the bleeds and stabilize him enough to get him out of ICU and into general GI unit. But this time things very different. First of all, he sleeps constantly; he is unable to keep himself awake. He can be mid sentence and drift off. He seems to have no concept of time or much memory of anything that has happened. He is frail and shaking uncontrollably. His Ascites has reaccumulated and because of kidney damage doctors don’t want to drain yet. Atleast he is still eating and drinking.
His new MELD is at 32. My understanding is that it’s a poor prognosis, but some people do recover. Pretty 50/50? But that his chances may be slimmer due to age, Ascites, and encephalopathy. They are talking about him coming home as though he is all better... but really they are just sending him home to wait until another fatal event happens... right?
I wish I could just get straight answers. Everyone seems happy that he’s alive for this minute, but what am I looking at for the next few months? Should we be getting his affairs in order? Any advice or experience is appreciated. I’m mentally and emotionally exhausted.