Frustrating but little things mean a lot.

[Alley27]

Hi everyone am I on my own or is it common for us to be unable to complete household tasks or have a normal social life.

Recently, I find myself struggling with even the basic things. I was able to come through my whole house in a couple of hours cleaning and have energy left over. This was as well as hold a full time job down that included travelling a lot.

I am so frustrated at myself because I can't what I used to.

I also have the odd giggle at my situation. I remember that I used to giggle with my nan when she would do something then have to sit down and rest between. She used to say that I will understand when I get older. Well don't know about older lol. I laugh at myself now, when I do something then have to sit down and rest between, I do understand her now lol.

Its these little things that mean a lot when we are having a particular bad day. I have redefined my bad days, I don't call them bad now, they are my WTF days.

When I am struggling I say WTF alley, come on girl, just a bit further, and I just giggle. Its a good job my fella understands a little of what I am going through.

On a serious note though, I feel that things are much worse for me than they were 6 months ago, even 6 weeks ago. I am not 100 percent sure of why I feel so bad lately. Yes I have had my medication switched by the consultant. I am on mycophenolate and budesonide and ursodioxychloric acid, I have the overlap, but I don't feel at all well, I am struggling. I just would like to know if anyone else is in the same boat.

I wonder if the consultant is actually telling me everything..

Take care and be well xx

[Hidden]

Hi

I'm so sorry you are suffering so much. I'm the same, I can't do half if what u used to do, and yes it is frustrating but just try and listen to your body. Love and hugs Lynne xxxx

[jane1964]

Hello yes I am much the same it's very frustrating but I have found fighting it doesn't work for me it's better if I rest when I need to.I have found that I seem to have times when the fatigue is worse and some days occasionally are better but overall I find ladies in their 70's who have the energy to do a lot more than me and I'm in my 50's.I try to use my energy to do things I enjoy when I can and ask for help when I need it.

[airtours in reply to jane1964]

I am the same good days and bad -have to rest when needed .Take care.

D

[airtours]

Just rest when you need too,I get like you but have learnt to rest when needed.

Do what you body is telling you.

All the best.

D

[Kristian]

What you describe sounds very familiar, lol.

[Hidden]

Good morning Alley27,

Sorry to hear you are not feeling so well.

With symptoms that are worsening, including fatigue, may I suggest you arrange to see your liver specialists or GP soon?

It may be due to a change in your medication, however, you should not assume this and ensure you have a clinical assessment.

Best wishes

Trust 9