Hi all
Got the call at 10 am yesterday. Upto Kings in a fast response vehicle. Back home by half eight yesterday evening. Another no go. Emotionally ok now after so many failed attempts it's kind of become the norm. When it does happen it will just be an added bonus. Apologies if I sound a bit crass but it's my way of dealing with the situation.
Max
Hi Maxey. Sorry to hear of another no go. At least you know that you are a priority and I'm sure it will happen soon. Get a good nights sleep, the next call could be very soon! Hoping the next call is the one. All good wishes. Alf.
Thanks Alf. Haven't slept all that well. The transplant coordinator that I had was so good. She continually kept me updated and when told me that it wasn't going ahead managed to secure some hospital transport home in less than an hour which was refreshing as I usually get the train . Not sure how she wangled that one as the wait is usually hours.
Hi Maxey. Good to know that you were being properly looked after. Well deserved after 6 failed calls! Nice to be able to go home door to door saving not only time but extra stress when you're tired and very probably emotionally drained. Rooting for you and willing your next call to be soon. Get that good sleep tonight! Alf.
Sorry to hear and hope you as well as can be. Hopefully you managed some sleep and the next call goes ahead and is soon
Hi Maxey, I am truly so gutted to hear of this disappointment again. I hope you can rest and regroup again, ready for the next call, which is so near. Jaycee
Thank Jaycee x
Oh dear Max, talk about hard times for you ☹️. So sorry for you....
I don’t think you sound crass at all. I think you are holding up really well in the face of these very very stressful times for you.
My fingers are🤞🤞for you. At some time soon i’m sure you will get your successful TP.
Miles
Thanks for your support Miles.
Can't add any more to what has already been said so sending a ❤ to you, only wish it were a liver.
Bless ya xx
I can only also add my best wishes and hopes that the next call is the one
David
Thanks David.
Oh Bu99er it Maxey, not again. please try not to get despondent, when they get a perfect liver, you will get it. Your not being crass, it's just a coping mechanism we use, to make us feel better. I hope and pray your wait for a good liver will happen very soon.
Keep your chin up,
David
my heart goes out to you Maxey, you will end up in the Guinness Book of Records the way you are going. My fingers are crossed for you, that the next one will be THE one. Just curious, but do they explain why it doesn't happen etc.? I hope to see some good news in the very near future for you. K
Hi Kit
They give a brief explanation each time. 4 have been DCD ( donar by cardiac death) where there is an hour window of opportunity to remove the organ after life support has been removed due to blood pressure levels / oxygen depletion amongst other reasons. Twice this had been successful and the livers had been transported to Kings only to find upon physical examination were deemed to fatty for transplant leaving me resting in the knowledge that they will only give me a perfect liver.
Hello Max
Sorry to hear this, my husband has been on the list 4 weeks now, he got a call last week and we flew over to Kings but it the liver wasn’t suitable, we were advised to stay overnight just in case. He’s so unwell at the minute and I hope we get another call soon.
Wishing you all the best and hope also the next call for you is the one!
Geraldine 😊
Thanks Geraldine. Please pass on my best regards to your husband. I'm sure you will get another call very soon.
Hi Maxey
Here's a hug for being a strong brave we soul who's keeping focused 😁👍.
Love Trish x
What a lovely hug that was Trish. Many thanks x
Hi Maxey,
Do you just love those blue lights and nee naa’s that much??
I do feel for you, and really hope your time is coming very very soon. Keep being chipper, you’ll get there!!
Andy.
So so sorry Maxey,
It's just not fair, I'm glad you're keeping positive. Also very glad to hear they brought you home this time, you shouldn't have to deal with public transport.
Sending positive vibes, and big hugs. Thinking of you.
Wass x
Love to you Wass. Thinking about you and hoping it's soon xx
Hows you Wass?
Not been to good, had banding last week, which even under deep sedation leaves me feeling very sorry for myself. Sorry to moan, I'm feeling sorry for Maxey at the moment, so generally in a slump. Thanks for asking Trish, hope some of your problems are a bit better.
X
Wass
I'm sorry to hear your feeling in a slump and concerned about Maxey who I'm sure will be fine with everyones support and friendship from this forum!
I'll check in on you tomorrow as I have other plans. Please try and rest and I'll check in on you tomorrow as you"ll be off to sleep shortly.
Nighty nite ...sweet dreams
Love Trish x
Hi Wass71
Sorry to but in but just wanted to let you know that you are in my thoughts and prayers , thinking of you always. Love and hugs Lynne xxxx
Nighty nite again Wass, I do hope you can manage to sleep.... Sweet dreams if you do ! Love Trish x
Hi Maxey, what a brilliant guy you are. Such a positive way to deal with a very trying situation. Lots of love to you, stay strong and well.
Sorry its happened again but it cant go on much longer maybe it will be lucky seven for you next time xx
Thanks Judy. Lucky 7 eh x
Yep im sticking with that for now the other 6 were not good enough only the best for you x
Hi Maxey I hope you are feeling rested now, everything crossed for the next call.
I have nothing but respect for you Max. To stay so positive in such circumstances is remarkable 👏👏👏
It can be hard trust me.
big Belfast hug coming your way Maxey for attempt no 6 but your time is coming...much love n good wishes the next one is the real thing xxx
Waiting call from GP 
Getting the call
Call from GP
Just had the call
