Call no 6: Hi all Got the call at 10 am... - British Liver Trust

British Liver Trust

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Call no 6

Maxey666 profile image
40 Replies

Hi all

Got the call at 10 am yesterday. Upto Kings in a fast response vehicle. Back home by half eight yesterday evening. Another no go. Emotionally ok now after so many failed attempts it's kind of become the norm. When it does happen it will just be an added bonus. Apologies if I sound a bit crass but it's my way of dealing with the situation.

Max

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Maxey666 profile image
Maxey666
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40 Replies
alfredthegreat profile image
alfredthegreat

Hi Maxey. Sorry to hear of another no go. At least you know that you are a priority and I'm sure it will happen soon. Get a good nights sleep, the next call could be very soon! Hoping the next call is the one. All good wishes. Alf.

Maxey666 profile image
Maxey666 in reply to alfredthegreat

Thanks Alf. Haven't slept all that well. The transplant coordinator that I had was so good. She continually kept me updated and when told me that it wasn't going ahead managed to secure some hospital transport home in less than an hour which was refreshing as I usually get the train . Not sure how she wangled that one as the wait is usually hours.

alfredthegreat profile image
alfredthegreat in reply to Maxey666

Hi Maxey. Good to know that you were being properly looked after. Well deserved after 6 failed calls! Nice to be able to go home door to door saving not only time but extra stress when you're tired and very probably emotionally drained. Rooting for you and willing your next call to be soon. Get that good sleep tonight! Alf.

chugalong profile image
chugalong

Sorry to hear and hope you as well as can be. Hopefully you managed some sleep and the next call goes ahead and is soon

Hi Maxey, I am truly so gutted to hear of this disappointment again. I hope you can rest and regroup again, ready for the next call, which is so near. Jaycee

Maxey666 profile image
Maxey666 in reply to

Thank Jaycee x

ThreeSmiles profile image
ThreeSmiles

Oh dear Max, talk about hard times for you ☹️. So sorry for you....

I don’t think you sound crass at all. I think you are holding up really well in the face of these very very stressful times for you.

My fingers are🤞🤞for you. At some time soon i’m sure you will get your successful TP.

Miles

Maxey666 profile image
Maxey666 in reply to ThreeSmiles

Thanks for your support Miles.

Laura009 profile image
Laura009

Can't add any more to what has already been said so sending a ❤ to you, only wish it were a liver.

Bless ya xx

Maxey666 profile image
Maxey666 in reply to Laura009

Me too Laura. I'm in no doubt that one day, hopefully soon,it will happen . X

I can only also add my best wishes and hopes that the next call is the one

David

Maxey666 profile image
Maxey666 in reply to

Thanks David.

davianne profile image
davianne

Oh Bu99er it Maxey, not again. please try not to get despondent, when they get a perfect liver, you will get it. Your not being crass, it's just a coping mechanism we use, to make us feel better. I hope and pray your wait for a good liver will happen very soon.

Keep your chin up,

David

Maxey666 profile image
Maxey666 in reply to davianne

Thanks David. I do seem to be able to cope easier now having been called so many times. Being in relatively good health and feeling strong at the moment helps no end.

kitkatkaz profile image
kitkatkaz

my heart goes out to you Maxey, you will end up in the Guinness Book of Records the way you are going. My fingers are crossed for you, that the next one will be THE one. Just curious, but do they explain why it doesn't happen etc.? I hope to see some good news in the very near future for you. K

Maxey666 profile image
Maxey666 in reply to kitkatkaz

Hi Kit

They give a brief explanation each time. 4 have been DCD ( donar by cardiac death) where there is an hour window of opportunity to remove the organ after life support has been removed due to blood pressure levels / oxygen depletion amongst other reasons. Twice this had been successful and the livers had been transported to Kings only to find upon physical examination were deemed to fatty for transplant leaving me resting in the knowledge that they will only give me a perfect liver.

Dannythedog profile image
Dannythedog

Hello Max

Sorry to hear this, my husband has been on the list 4 weeks now, he got a call last week and we flew over to Kings but it the liver wasn’t suitable, we were advised to stay overnight just in case. He’s so unwell at the minute and I hope we get another call soon.

Wishing you all the best and hope also the next call for you is the one!

Geraldine 😊

Maxey666 profile image
Maxey666 in reply to Dannythedog

Thanks Geraldine. Please pass on my best regards to your husband. I'm sure you will get another call very soon.

Hi Maxey

Here's a hug for being a strong brave we soul who's keeping focused 😁👍.

Love Trish x

Maxey666 profile image
Maxey666 in reply to

What a lovely hug that was Trish. Many thanks x

Huggy7614 profile image
Huggy7614

Hi Maxey,

Do you just love those blue lights and nee naa’s that much??

I do feel for you, and really hope your time is coming very very soon. Keep being chipper, you’ll get there!!

Andy.

Wass71 profile image
Wass71

So so sorry Maxey,

It's just not fair, I'm glad you're keeping positive. Also very glad to hear they brought you home this time, you shouldn't have to deal with public transport.

Sending positive vibes, and big hugs. Thinking of you.

Wass x

in reply to Wass71

Love to you Wass. Thinking about you and hoping it's soon xx

in reply to Wass71

Hows you Wass?

Wass71 profile image
Wass71 in reply to

Not been to good, had banding last week, which even under deep sedation leaves me feeling very sorry for myself. Sorry to moan, I'm feeling sorry for Maxey at the moment, so generally in a slump. Thanks for asking Trish, hope some of your problems are a bit better.

X

in reply to Wass71

Wass

I'm sorry to hear your feeling in a slump and concerned about Maxey who I'm sure will be fine with everyones support and friendship from this forum!

I'll check in on you tomorrow as I have other plans. Please try and rest and I'll check in on you tomorrow as you"ll be off to sleep shortly.

Nighty nite ...sweet dreams

Love Trish x

in reply to Wass71

Hi Wass71

Sorry to but in but just wanted to let you know that you are in my thoughts and prayers , thinking of you always. Love and hugs Lynne xxxx

in reply to Wass71

Nighty nite again Wass, I do hope you can manage to sleep.... Sweet dreams if you do ! Love Trish x

Hi Maxey, what a brilliant guy you are. Such a positive way to deal with a very trying situation. Lots of love to you, stay strong and well.

Countrywalks profile image
Countrywalks

Sorry its happened again but it cant go on much longer maybe it will be lucky seven for you next time xx

Maxey666 profile image
Maxey666 in reply to Countrywalks

Thanks Judy. Lucky 7 eh x

Countrywalks profile image
Countrywalks in reply to Maxey666

Yep im sticking with that for now the other 6 were not good enough only the best for you x

Hi Maxey I hope you are feeling rested now, everything crossed for the next call.

Isabelle2 profile image
Isabelle2

Oh that is a (very rude word)!

I’m so sorry. Hang in there, it’ll be worth it.

Isabelle xx

Braveheart65 profile image
Braveheart65

I have nothing but respect for you Max. To stay so positive in such circumstances is remarkable 👏👏👏

Maxey666 profile image
Maxey666 in reply to Braveheart65

It can be hard trust me.

in reply to Maxey666

Hi Max

So sorry it wasn't for you again. You are such a positive guy, a true inspiration. Keep your chin up🤗 take care of yourself Lynne

Maxey666 profile image
Maxey666 in reply to

Thanks Lynne xx

in reply to Maxey666

You are very welcome. Take care and rest!!

Bbsmom profile image
Bbsmom

big Belfast hug coming your way Maxey for attempt no 6 but your time is coming...much love n good wishes the next one is the real thing xxx

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