Anemia

[LorraineLouise]

Hi everyone!

I was just wondering if anyone else with PBC suffers from anemia? I was just looking at my most recent labs, and see that I am anemic. This is the latest. Always something new with this disease. So I guess my question is if anyone else is Anemic, do you take an iron supplement? I will be seeing my doctor this week, but was just curious about others. Thank you and hope that you’re doing as well as can be expected.

[jojokarak]

It's quite normal with liver disease to be anaemic I can't remember if they gave me iron supplements before transplant but I had them post

[LorraineLouise in reply to jojokarak]

Thank you so much for your reply.Have a great day!!!

[jojokarak in reply to LorraineLouise]

No worries you too x

[Hidden]

Good morning LorraineLouise,

I am glad to hear you have an appointment with your doctor this week. There can be many causes of anaemia and your doctor will be able to discuss your full medical history to ascertain cause and appropriate treatment.

I have copied a link to our PBC information which I hope you find helpful

britishlivertrust.org.uk/in...

Best wishes

Trust9

[LorraineLouise in reply to Hidden]

Thank you!

[pip-lit]

Hi,

I take both iron tablets and have a monthly iron infusion, where they attach me to rusty bucket which is on the hospital roof. For 2 or three days I feel like a new man, then the tiredness slowly creeps back. after 5 years they have at last found a place that oozes blood. Good things to come....

Take care, better things to come

Bob

[LorraineLouise in reply to pip-lit]

😂😂😂. Thank you!!!

[Hope1011]

Hi LorraineLouise, I have AIH and iron and platelets have been low for a long time. ☹️

Hope

[LorraineLouise in reply to Hope1011]

Thank you Hope for your reply. I appreciate you and wish you the best.

[Cobwebs]

Don’t know what PBC is but I know that I am struggling with anaemia. Apparently two possible causes (or both?). Too many antibiotics and/or a poorly liver. I had five different antibiotics in the space of six weeks. And I have cirrhosis. 💩

[LorraineLouise in reply to Cobwebs]

Thank you. I also have cirrhosis😡.

[Cobwebs in reply to LorraineLouise]

No fun but, hey, we get on. As best we can. 😻

[Cobwebs in reply to LorraineLouise]

And I can’t take iron supplements because I get constipation! So do it through my diet. My hair has stopped falling out but is growing back in silly tufts. Have a good day. x

[LorraineLouise in reply to Cobwebs]

I too loose a lot of hair. It seems to run in cycles but never has returned to the way it was before the Urso. It started falling out as soon as I started take it.

[Hidden in reply to Cobwebs]

Hi there Cobwebs, I am struggling with anaemia as well.

They have given me 4 blood transfusions and iron tablets in 5 months.. they still have no idea what causes it.

In fact all my bloods dropped white, red and platelets. They did a bone marrow biopsy and found bone marrow not producing properly and put me on injections.

Then took me off, now I have antibiotic via nebuliser called ped neb. Once a month. I am post transplant 5 months.

You mentioned your hair falling out? Was that due to the anaemia?

Jaycee

[Cobwebs in reply to Hidden]

Culmination of too many antibiotics in a short space of time plus the anaemia. Luckily, I have lots of hair so only my hairbrush and my hairdresser noticed! The re-growth is quite amusing!?

Deb

[Hidden in reply to Cobwebs]

Maybe that is the reason my hair is falling out. I have been on anti biotic since transplant and iron tablets and blood transfusions... Jaycee

[Cobwebs in reply to Hidden]

I had five different antibiotics in the space of six weeks. Discharged from hospital with no diagnosis!

GP subsequently diagnosed a chest infection which two chest X-rays at the hospital failed to acknowledge. Nor was the anaemia picked up. But I am okay now and optimistic! x

[Purple-Qi31]

Hi

My father anemic. One of his specialists put him on carbonyl iron and Vitamin C, twice daily. The C helps iron absorb better.

[LorraineLouise in reply to Purple-Qi31]

Thank you. I appreciate your post.

[Hidden]

Hi there, I have anemia post transplant I have had 4 transfusion in 5 months and I am on iron tablets.

I feel better for a while, then I get breathless and tired again.

They have done tests that show my bone marrow had an issue but I seem to be improving a little now.

It is not nice feeling this lack of energy. So I hope they sort you out soon. My thoughts are with you.

Jaycee

[LorraineLouise in reply to Hidden]

Thank you so much for your good wishes. I so appreciate them and send them right back to you. Yes the fatigue is awful!!!