Jaundice - unexplained

[Highflying54]

Hi

I have been suffering from jaundice for the past two weeks now. LFTs came back as ‘deranged’ and then ‘stably deranged’. No pain but medics suspect blocked bile duct. Poor appetite and weight loss. Ultrasound showed no issues so follow up in two weeks time plus MRI a few days later. Jaundice was improving mid week but has deteriorated again. Anyone had a similar experience?

[Hidden]

Yes I did.. after a few thoughts of blocked bile ducts and other suggestions it turns out I had autoimmune hepatitis!

I had to travel to a hospital that had a specialist liver unit and had biopsy done. Hope you get sorted

[Highflying54 in reply to Hidden]

Thanks Sudio. I hadn't heard of autoimmune hepatitis. Will check it out. I hope you are recovering well.

[Hidden]

Hi highflying

Welcome to thi s. Fantastic Forum!

I haven’t had those symptoms but good to see you are getting an MRI scan. My “major” problem wasn’t found by an Ultrasound Scan 👎🏻!

I’m sure you will get more informative answers than mine soon!

Not your fault but I wonder why your profile picture is that from jojo’s profile - unless you are twins 😁

Miles

🇧🇧

[Highflying54 in reply to Hidden]

Thanks PiloMilo, Not sure about the photo. Will update mine on my profile!

I hope you get sorted - its such a debilitating illness.

[Hidden in reply to Highflying54]

Thanks highflying

I have been properly sorted thanks! By a Transplant 👍.

Miles

[Highflying54 in reply to Hidden]

That’s great news. I hope you continue to thrive x

[Hidden in reply to Highflying54]

👍😁 thx

[Happyharvie]

hi i have been like u last year got jaundice overnight turned out i had a tumour in bile duct which came bk as cancerous so up 2 Edinburgh for hunners a tests then a resection done im now 11 months post surgery hard going but hopefully im on the right road hope u get sorted out soon x

[Highflying54 in reply to Happyharvie]

Thanks Happyharvie

It’s so hard not knowing what’s going on and your story gives me hope even if they find a tumour. Keep going!

[Happyharvie in reply to Highflying54]

i think the hardest part is no knowing its not good on your head u go through every possible senario but have faith that everything will b ok ul get sorted out best ov luck 2u stay strong positive thinking all the way good luck x

[Highflying54 in reply to Happyharvie]

Thanks Happyharvie

I tend towards the positive anyway and am focussed on being well again. Just need to understand what’s happening.

[yaniway in reply to Happyharvie]

What's your symptoms? Only jaundice?

[Scott8816]

Hey everyone, I was diagnosed with gilbert syndrome in January and then epilepsy in March of the year. I was a fot runner, doing ultra marathons last year and now I feel like rubbish all the time. Jaundice in my eyes and only high bilirubin with pain. I've been told by a couple doctors it shouldn't cause pain and others that say it does. This is after them googling the syndrome and printing it out, going through it and going oh I didn't know that. Just looking for clarity and when to be really forceful with them. My back is in pain and my right shoulder. Waking up soaking in sweat and just cant keep my eyes open ?

[Highflying54 in reply to Scott8816]

Hi Scott8816

So sorry to hear of your situation and I do hope they get on top of the pain which must be draining both emotionally and physically. It’s so hard going from being fit and healthy to being sick. (I too am a runner (well jogger and over short distances) and finding it hard sitting around instead of being active. I think you do need to be assertive. It’s your body and you know it best.

[Scott8816 in reply to Highflying54]

Thank you

[Kels89f]

Hi,Did they find out what was wrong in the end? I’m having the exact same issue as you but it’s been a month. I have an MRCP scan on Friday so hoping for more answers soon.

Hope you are well. X