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British Liver Trust
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Feeling great!

Hi everyone. I'm feeling really good today! I feel very well (liver transplant four and half months ago and everything working well). Spinal fractures from my falls are healing and I now have no pain. I've not had to take any pain meds for days, probably getting on a week. I can take off my 'Robocop' spinal brace to sleep and that is fantastic!! (got to wear it in the day for at least another six weeks). I'm going to take my first walk for sheer pleasure this afternoon and I'm also going to 'Stand and stare', something that life seemed too busy for before my condition was first diagnosed. Life is wonderful, thanks to my donor and their family and the fantastic transplant team.

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I'm so happy for you, your bringing tears of happiness to my eyes Alf. Onwards and upwards. X

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Hi Alf

That's fantastic, so pleased for you and your family. You are an inspiration to us all. Yes, the donor , their family and the transplant team are all wonderful. Onwards and upwards. Take care Lynne

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Congratulations, great to hear 😊 We can never thank our donor families or the fantastic surgeons and nurses enough for our lives! Thank you, to me, just doesn’t cover the dramatic effect they have had on my life.

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Alf

I’m so glad things are looking up. Soon you’ll be looking up at the trees in leaf and say to yourself β€˜ God, I’m really so lucky to be here, seeing all this’ at least that’s what I was like a little less than a year ago.

Isabelle xx

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Hi Isabelle. Had a lovely walk today and saw squirrels, swans, Mallard ducks and moorhens. I notice far more detail now than I ever did before. It's like looking through new eyes.

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Lovely and moving! 🌺

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Hi AD I hear you did a GJ re CW πŸ˜πŸ‘

Miles

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Anything for my British cousins, LOL! πŸ˜‰

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Thanks miss america 😁

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Lol! πŸ˜‚ Thanks for making me laugh!

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You saw all that Alf? Blimey fella I never knew Roman Road market sold such such delicacies! πŸ˜‚πŸ™„πŸ˜‚πŸ™„πŸ˜‚

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You've got to be up really early Poo. They've usually sold out by 9, lol.

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Ah but did they say β€œGood Morning”? That’s when you know the tablets are really working...

Milo Pilo Pillo.. you can finish the word fredermick

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Hi Pillow, Did they say good morning? Did they say good morning? Milo, they had a little table set out with scones and a 'lashings of ginger beer'. We chatted for at least an hour. The swans invited me back next week to play croquet. There was a rabbit running up and down the river bank looking very agitated. He kept looking at his pocket watch and repeating"My fur and whiskers!" After the feast I tiredly made my way back to the car, skirting the Faraway Tree and avoiding falling down the rabbit hole .Oh, my tablets. Yes, they're checking them out at the next clinic, lol

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Tres bien moi vieux fruit

πŸ˜πŸ‘πŸ˜πŸ‘πŸ˜πŸ‘

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I think you’ve been plagiarising again Mickle Pickle 😁 or should I call you Lewis? No. Wait. Weren’t you in the Rovers or were you down the hole? Go on - own up!

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Actually Pillow wasn’t what I had in mind, but you knew it was a longer word than Pillow didn’t you fred. 😁

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Yes, but I couldn't spell it, lol

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Well ite ends in ck but it may not be what first springs to mind πŸ‘

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Bock?

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No! Try again 😁

What’s a bock when it’s at home anyway? 😁

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You greatbigfred - ace news me ol’ fruit πŸ‘

Milo

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Hey MiloPillow. Thanks me ducks.

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Woah there fella? What’s that accent ya trine e write πŸ˜‚πŸ™„πŸ™„

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Well I’m in Daarbyshire born Nottinghamshire though. The greatfred? He’ll reply I’m sure 😁

Piloh

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I'd say that one's a pretty good John Wayne there Poo? Like 'Shad ap an drink ya milk we gad a raaail road ta build'...................................... 'Me duck' is Lincolnshire but I was born in Yorkshire.

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So pleased for you Alfred

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Thanks Smyally.

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Good morning Alf,

Good on β€˜ya treacle! That’s really great and keep singing about your road to a full recovery as if the whole world can hear you 😊. There are some very poorly and frightened pre and post liver diseased individuals that will read your post but your positive and happy tone will, I , hope, genuinely support, inspire and give others a hope. As you know Alf I can shoot from the hip so I will do so again and honestly can say your a good geezer. Your posts are encouraging, useful, full of integrity and well meant πŸ‘ŒπŸΌ. That’s it over, you’ll never read me writing such a big compliment again and I’ll go back to being the man who was born in a bad mood. Seriously Alf, well done and long may recover in every form continue for you and us all. Cheers to you pal!

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You? Shoot from thehip? Never knew that me ol mucker...

Millo

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πŸ˜‚πŸ˜‚πŸ‘ŒπŸΌπŸ‘ŒπŸΌπŸ‘πŸ‘

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Good morning, Poobear, just wanted to say that personally I liked your reply to ATG. As a fairly new person to the site. Waiting for transplant. I have found so many positive and uplifting people. Who offer genuine kindness and support.

ATG is one of those.

Jaycee

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Thank you 😊. Are you listed Jaycee?

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Yes since July with one call in November but sent home because it was too big. 2 tumours, 3 TACE, now just waiting again. I have moments of cup half full to overflowing. Then others when I am terrified. That I am 68 and they will take me off the list, or the tumours will spread. My head and heart then go to the terrified stage. It is great to see posts from all the folks who have come through the other side.

Jaycee

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Hi JC

Hope you get the magic call soon! Yes the waiting is hard indeed...

Miles

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Thank you Miles. Stay well and happy.

Jaycee

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Thank you Jaycee, and I would like to say a personal thank you to you for the caring and encouragement you have given to me and to many others on this forum. Jelly legged Alf.

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Thanks Poo. It's very good of you to say such things. I may have great difficulty squeezing my head through the doorway after reading all the kind things that you said about me, lol. I do try to give hope to others because when I was ill ( and also classed as terminal for 4 years) I didn't know about forums such as this, I didn't even know about special diets up until transplant assessment. What a difference it would have made to me to have been able to read all the posts on here. I only found this forum post transplant when I was trying to find out if anybody else post transplant had any of my problems. I was amazed at all the caring replies and the help and information I received. So now I feel that it's pay back time! If I can help reassure anyone or give them hope then I'm more than happy to do so. Your posts are inspirational and very often humerous and let's face it we all need a laugh at times travelling through this illness. You're a diamond geezer Poo. Thank you once again. Alf. P.S. Talking of shooting, if your going to shoot anyone I suggest you shoot MiloPillow. I'm sure that his wife would be eternally grateful!! lmao

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πŸ˜‚Milo and me, both grouches!

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Lol, You're both great guys!!

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Haha ha ha Ha. Ha. Ha. Ha. Ha 😁

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Gee thx pooey 😁

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Gee thx freddy 😁

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Good Morning Alfred!

Such amazing news to read this morning! I must say I'm one of many following your progress ! Go Alfred Go!!!

When I finally get confirmation as to whether I do have PBC or another liver disease or whatever on the 19th of March that I too get the wonderful support you've had! So far since joining this wonderful forum about a month ago I now have a few lovely friends who I try my best to support even though it's early days for me on the liver issue front!

Take care my friend

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Thank you Slaines. This is a wonderful forum. I have received so much help and have gained so much knowledge since I joined. Yes, there are a lot of lovely people on here, so supportive and caring. It's a stressful time for you waiting for results. I hope everything goes as well as it possibly can for you. very best wishes. Alf

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Hi Alf

Cheers for your supportive reply which I really do appreciate!

Presently I'm trying to get back on track after being a very naughty since just before Christmas and gained weight which I know has caused my pain symptoms to increase again!

As from today I'm back on track and eating healthy again and drinking more water! Today I've been to the gym and biked for 1 hour 40 minutes plus did a little treadmill for 20 minutes! Hopefully this routine again tomorrow morning ! My aim is to reduce weight and dress size from 14 to 12! But most of all is improve my liver so that the consultant will be pleased with me in March!

Well nighty nite Alf and thanks again !

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Hi Slaines. It sounds like (Christmas apart) that you are doing all the right things to help your poorly liver. I think that drinking water is a great thing to do as it helps to keep the system flushed out. Through my years of illness I actually replaced all of my drinks (coffee, tea, squash etc) with water. I got so used to it that after my transplant the nurses were surprised that all I ever wanted when offered a drink was water. I do drink coffee again now but I still drink lots of water. Make sure while you are losing weight that you are retaining your muscle. I'm sure you will be because of the gym and cycling. If while you're doing exercise and eating healthily you don't get that pain then you know that you're heading in the right direction. Keep up the good work.Power to your elbow. Alf

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Many thanks Alf! I've taken your lovely comments on board and will try to take care of my muscels plus drink lots of water !

Nighty nite Alf

Slaines

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Yep Ishrit - 2 and a half litres a day, well maybe a bit less for a young lass like you..

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Carefully does it Slaines! Seems a lot to me. Wait.No. It is a lot to me!

In fact its totally beyond my capabilities 😁

Milo

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Miles

Thank you for your note too! You must know that it has taken me months of daily visits prior to Christmas period to build up to the 2 hour workout! However I believe

everyone who's new to the gym must take there time at buikding up strength and not push themselves to hard! Slowly does it!

Nighty nite to you and to others reading this note!

Slaines

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Great news xx

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Enjoy your walk Alf and a continued healthy recovery.

Take care

Trust1

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Thank you trust.

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Hi so so happy for you , very good attitude towards life yes it’s beautiful and it’s for you . Well done to you dear πŸ‘πŸ‘

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Thank you for those kind words Ftydy. Alf

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Brilliant Alf, delighted to hear you are pain free. Enjoy a stand and stare or a sit and a coffee xx

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Thanks IPCN. Think it's more sit and coffee today. I've got jelly legs after long walk yesterday, lol. Alf

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That’ll learn yuh

😁😁😁😁😁😁😁😁😁😁😁😁😁

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Yeah, I know Pillow, probably a bit much for first real go at it but I had a great time. I slept for England last night! lol

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Oh I didn’t know you played cricket....

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Glad to hear your on the up, good luck to the future.

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Thanks soly.

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So good to hear things are going well for you.

Mary

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Thank you Mary.

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