Confused with latest tests

[Roy1955]

Hi again.

I was diagnosed with cirrhosis 9 months ago. (Alcoholic)

Bloods were high, fibroscan 27, endoscopy showed what was described as "2 barely noticeble varices", no other problems and portal vein normal.

I stopped drinking straight away and 6 months later all bloods were normal and hepatatic carcinoma surveillnce scan was clear so that's all good.

What's confusing me is that today I had a repeat fibroscan and the nurse could not believe the result, initial result was average 10 with individual readings between 2.6 and 23.

She repeated the test and it came out a little higher with a result under 15.

She was cagey about giving a diagnosis but did say that normal bloods alongside the fibroscan result did raise the question about the original diagnosis or that I might be one of the rare people who's cirrhosis is repairing.

She added the Dr might want to do a biopsy so your comments on that please.

Any insight into what's going on will be apreciated.

Roy

[Eurotrash]

Hello Roy!

I'm happy to hear that you're stable.

My understanding is that the gold standard for cirrhosis diagnosis is a biopsy.

You should discuss it with your doctor as it's important to know what your condition is.

Certainly the results are encouraging.

I'd recommend you don't make any assumptions and that you stay off the booze to make sure you don't damage your liver further.

Let us know how it goes! It's always good to hear people's' success stories!

All the best and take care!

[Roy1955 in reply to Eurotrash]

Staying off the booze is my priority 270 days sober today and not going back there!

Now it's time to lose 50 pounds.

This 62 year old body is mending (I hope) I did not expect an improvement like this.

[Eurotrash in reply to Roy1955]

Keep up the good work and chin up!

[Dort1234 in reply to Roy1955]

Well done on your stopping. Were very much the same I'm 340 days. And test normal and need to lose weight ( start after Xmas ) 😞

[Faithfull in reply to Eurotrash]

Liked your reply I am having the last person in the race of standard I have no understanding never answered avoided when asked I no I am not clued up to many thing wrong so why the hell don't they no I ain't drunk nothing not even perfume case it's got alchol in it but I feel they think I'm having a sneaky one .

I would have breather liver every day I just need support sorry I got bad nerves as got appointment today

[impomia2003]

Regardless of the cause of chronic liver disease, fibrosis is the liver's natural wound healing response. If the injury is removed or treated, fibrosis and cirrhosis are reversible.

Cirrhosis can ultimately because irreversible but that point of no return is not entirely clear. Therefore, the goal is to "Treat the underlying disease and monitor for fibrosis progression or regression.

[Faithfull in reply to impomia2003]

Yes your right

[idyllic420]

Hi Roy. Hope that all is well with you. Just wanted to know if you ever got a biopsy done?

[Onesmallstep1969]

Count yourself lucky that you're one of the ones where someone can legitimately question whether you still have cirrhosis! The Fibroscan is excellent at ruling out cirrhosis once you've dipped lower than a certain number, depending on your disease's origin. Most cut-offs are at 7. Some are a bit lower (6?) to rule out cirrhosis with a probability over 95%. If you ever get to 5, 4, 3 or 2, numbers lower than 6, breathe a sigh of relief that even the most conservative doctors would doubt that you have cirrhosis. Keep going: you're headed in the right direction, that's for sure.

[Roy1955 in reply to Onesmallstep1969]

I wrote this 5 years ago.Still here and apart from 2 seperate days when I had 2 glasses of vino I count it as 5 years sober.

(5 years and 6 days but who's counting😊)

Never did repeat fibroscan or a biopsy.

Still compensated and hoping it stays that way

[pushthrough]

Wow Roy! I had to look again at the date. It was 4 years ago and it gives many of us hope. I’m 39 and compensated. I don’t believe a biopsy is the gold standard because they can sample a good area or bad one. I’m starting to believe there is no gold standard. I’m hoping mine reverses. I was at around 18kpa 4 months ago. Congrats to you!