Went straight new hospital yesterday stomach worse bloating pain from middle chest then swelling is different shape point in middle at top can't sit eat hardly ,sent straight to 12hr day care unit as he thought I had pancreas bad one can't spell it ,had ultra sound then ct with dye and had phase morphine blood ok everything ok no fluid in abdomen said its me liver ain't it like I already now what's going on.
The surgical team said I could go home and nod as in yes me liver but they was as good as gold but I'm still not well it started again hour ago ain't eat and the stomach is like it's being crushed into me back I did say about the penic thin bowels but nothing was said I've been on movicol since it started in Jan , trying get help now gonna call mental health social worker if it don't get worse as I can't breath when it's at a peak. Any one got a clue how can I get someone to help me when I'm ill or help with what's going on and I won't take pain killers but has to have morphine yesterday ,don't think I can go weekend with nothing but I hate taking them.
Love to all
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Faithfull
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Hi faithful evrythin u have described ive been through and more when your stomache is swelled it pushes up on your lungs causing that shortness of breath and fatigue i felt lifeless most days and was sick of being admitted 2 hospital every month of last yr ive had scans ct and mri barium meal yuk😏 i was jst gettin back what ypur gettin now "its all part an parcel with your liver" yes i no that dr 🙄 sayin all that time and patience has got me wer i am 2day an of course my family i feel quite normal at the mo but do have my bad days but hey im still here i really hope u get 2 wer i am any tips that helped me please dnt hesitate 2 ask iwish you all the luck x
They diagnosed me early cirrhosis abroad here THR hospital dismissed all charges of being drink dependend 20 yrs discharged me back to GP now I moved they don't realize as I been left yr now even with me meningomia in head not checked so I gotta see new GP again thank you so much for reply it's not I'm glad you have it in glad you told me as it really helped me out thought is this normal I can't explain propa but thanks call the best to u and family .x
Your welcome hunni as i sed if your not sure on stuff an i can help jst ask or even if u jst need a chat about whats goin on 4 u im always here.i hope your ok an sorry for l8 reply xxx
Hi Faithfull - so sorry you're in such a poorly way. Could your social worker arrange for you to have what they call an advocate - someone to speak up for you when you're dealing with doctors, consultants, etc.? That would help I'm sure. Meanwhile, chin up my lovely and on we go! 😘
Thankyou as I'm so lonely I've isolated meself me ADHD makes it hard to have mates and I hate being like this I'm so grateful to you and Thankyou got insomnia driving me insane . Love to you and all and biggest hugs x
How are you doing? Always here to give advice and for you to let off steam!! Anyone would be angry at the way you've been treated. Love and hugs Lynne xxxx
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