Still struggling

[Gaynorlowson]

Hi me again still Having severe stomach pains and vomiting. Not eaten now for two weeks. Had bloods done on Friday says shows liver inflammation and higher lft levels but they say not enough to worry about. I feel so ill I feel worse than I did when I first had the transplant X any advice or similar experiences would help x

[AyrshireK]

What are transplant clinic saying on this? It can't be right.

Katie

[Gaynorlowson in reply to AyrshireK]

They just keep saying if I get any worse go to local a& e . My husband is not happy ww keep ringing liver coordinators but get no joy. One dr rang me back on Friday to say I may need a liver biopsy but to wait till I'm seen in clinic on tuesday . I don't know what else to do x

[Kate50]

Hi gaynor, sorry you are having such a hard time , I don't really have any advice other than I have been through similar things after transplant sometimes worse than others , usually told possibly viral orientated, had to take anti sickness pills just so I could keep down my medication,also tramadol made me really sick, things did improve massively when the steroids were stopped, although still have ups and downs on occasion, I also understand what you mean about the transplant team but take faith that if they were at all worried they would have you right back in so your liver tests must be ok, but I totally get you hang on in there it will get better , take care, look after yourself 💜

[Gaynorlowson]

Thanks for the advice I feel better knowing it's not only me. I know your right about liver team I think it's the pain etc that's getting me down and making me feel anxious. Thanks again x

[Kate50 in reply to Gaynorlowson]

Hi gaynor, I hope things start to get better for you soon, once you pass the 3 month mark and they start to reduce your meds then you will notice a big difference if you ever want to chat feel free to message me it's no bother xxx

[Gaynorlowson in reply to Kate50]

Thanks again for your advice and kind offer. Xxxx

[cazer]

i have not had a transplant yet but maybe listed soon...

however a couple of years ago I had a lot of stomach pain but assumed itwas just liver problems but then I had a gastroscopy to check for varices and they yes found varices but also numerous stomach ulcers... which was actually causing most of the pain so although we assume its ourliver or meds in can be unrelated.

might be worth checking with the doc that it couldn't be unrelated... good luck. cazer.