Sorry to hear about your pain. I have polycystic liver disease, so my liver looks like a bunch of grapes and I have constant abdominal tenderness and a lot of pain. I also have some hypersensitivity and find that a neuropathic pain killer such as amitryptillin or gabapentin work well. I find that heat packs work well too.
I don't feel feverish when I eat but I often get really bloated which then causes more pain. I can't pinpoint particular foods tho. I also have reflux so am on a ppi as Bolly refers to, this might help.
Not sure why you were given advice to eat a high protein diet? That's something people in the final stages of liver disease are advised to do if they are underweight. Most of us eat a normal diet.
However if you are having gastric issues there are a few things you could try:
You could do an elimination diet, which means for a while cut out one food groups, say gluten or dairy. See if your symptoms improve. If they do, then you have possibly found the culprit. If they dont, then re-introduce the gluten or the dairy and cut out something else, like sugar. It takes a long time and you must only cut out one food group at a time or you dont know what the trigger is.
Keep a food diary and see if some foods are worse than others, ie i cant eat saturated fats any more, so things like fish and chips are a no no (sob sob).
Long term pain killers are notorious for causing gastric problems and can cause ulcers and internal bleeding. Have a frank talk with your GP about the best pain killers for you, perhaps a patch rather than tablets so the drugs by-pass your stomach.
Long term antibiotics will have long term damaging effects too, but with them it may be a risk benefit dilemma if you are taking them for a life threatening lung condition. Do you have cystic fibrosis or something?
Hi Cheers you have been more helpful than my doctors DEFO agree about frank talk needed .... Is that why hospital would always be asking if I ever had hepatitis if indeed is final stages of liver dieaees.
Food diary think your right is way forward .. I know bread is main culprit milk dairy even curry am ok with.
As you can guess I have had few issues and think antibiotics sterilised my guts BUT like you say is all part of dieases trade offs I guess.
Defo don't make it any easy to live with ... Thanks again for help feed back
"Is that why hospital would always be asking if I ever had hepatitis if indeed is final stages of liver dieaees." - i dont know as i dont know the background to you being in hospital.
The best way to start a cure is to eliminate Dairy and Gluten from your diet. In addition, eliminate all caffeine (Coffee and tea) drink decaf tea. no alcohol and no wine. No cereal since they processed food. No processed foods in general. Eat fruits and vegetables preferably organic. Pesticides are very bad. No Apple cider vinegar. Nothing that is fermented. Start practicing Meditation and Yoga, The best medicine to heal
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