Motivational boost!: Lying in Bed at QE... - British Liver Trust

British Liver Trust

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Motivational boost!

Fastkat profile image
16 Replies

Lying in Bed at QE feeling really well as good as I’ve been in last 12 months.

Just seen by consultant and he recons condition worse and I just have weeks left.

Great motivation to improve my anaerobic level and get on that list. I’ve been trying for 9 months now so I better redouble my efforts!

It’s great to see so many of you getting THE CALL at the moment. I wish you all luck and a fruitful life after tx.

Andy x

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Fastkat profile image
Fastkat
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16 Replies
Millie09 profile image
Millie09

Hi andy, so your back at the Qe again, so sorry to hear the news.

Can't believe your feeling so well yet only weeks left, ..sending you my best wishes , keeping all crossed that a transplant comes your way .you will be in my prayers.. Linda. X

Fastkat profile image
Fastkat in reply toMillie09

Thank you Linda.

I just posted to get it off my chest!

The family has been in tears but I’m trying to lift my spirits as best I can.

I’m not about to sit round moping I will keep trying with the physio whilst I’m able. Strangly I don’t feel or look as ill as I am!

My last expected deadline was last Xmas but I’m still here. Got my daughters wedding in June and I’m hoping to be there 😀

Not looking for sympathy it’s only the giver that gets any benefit from that!

Forum has been useful help through the months

Best of luck

Andy x

Millie09 profile image
Millie09 in reply toFastkat

Hi Andy , and why not i say ! If it helps you then all good.

I can well imagine how upset your family are, and i can imagine deep down it is for you too,.

Don't give up the fight yet! You just dont know what will happen yet, awww that's lovely! And you will be there im sure. 😊.

What consultant are you under? I could come and visit you if you wanted..but ill leave that to you. Take care Andy..best wishes. Linda x

jules45 profile image
jules45 in reply toFastkat

Hi Andy, your an inspiration to me and your post brought a tear to my eyes. You are so brave and I salute you. I can't put into words what to say to you other than I'm not going to moan about my cirhossis àny more.

Kind wishes

Julie x

Fastkat profile image
Fastkat in reply tojules45

I do my moaning hear on the forum as friends and relatives are best not subjected to it. My wife takes the brunt god bless her

Andy x

Moan away 😄

h0b0 profile image
h0b0

Keep fighting. xx

Isabelle2 profile image
Isabelle2

Hi

I live in France so things are different here. More organs available as you have to opt out etc. Anyway, my situation declined rapidly although I wasn’t feeling that different and I, too had only weeks. Then a miracle happened and the next thing I knew I was waking up, post op and everything had gone to plan. 11 months later I am one very happy bunny. I hope, hope, hope the same happens for you. Lots of positive thoughts coming your way.

Isabelle

Fastkat profile image
Fastkat in reply toIsabelle2

Thank you Isabelle

My problem is I’m not on the list as they think I wouldn’t survive the surgery

I’m living in hope I can get fitter but my time is limited ☹️

Isabelle2 profile image
Isabelle2 in reply toFastkat

I sincerely hope you get on. I was accepted then I became really, really ill. One dr didn’t think it was worth it - I wouldn’t make it. Fortunately they were out voted.

That's not what you want to hear is it? I hope you can prove them wrong and make a full recovery soon.

All the best

Klodian

Smyally profile image
Smyally

Keep fighting and prove them wrong. Hope you get a chance to get listed for transplant. You have a really good attitude to life for someone in your position.

Thinking of you

Julia

Hi

Keep fighting, I'm sure you will make your daughter's wedding and she will glow with pride as you walk her down the aisle. Take care Lynne

Fastkat profile image
Fastkat

Thanks all for the support

I begin 6 weeks of increased training now when the QE will look at me again. I know it’s not enough time to build my strength and anerobics to a level where I would satisfy the tx panel. It’s not going to stop me trying though!

Andy x

Beauport profile image
Beauport

What a brave man you are. An inspiration to us all. Fight on my friend!

Fastkat profile image
Fastkat

I’m not brave I’m very frightened by what lies ahead. I save the tears for when I’m alone.

I know I need to stay positive. It’s funny but I never get depressed just feel sorry for myself sometimes. I know there are people out there who feel worse and are having a harder time.

12 months ago I looked terrible and most people thought that was it. However the stories on this forum helped me pick myself up and fight the disease.

The easy part for me was stopping drinking just wish I’d cracked that before it was too late to make a difference.

Anyway off I go for a walk 😅

Mandy1983 profile image
Mandy1983

Well they told me the same fastcat about surgery .im here touch would 3 yrs on .you can defy those odds so dont give up.keep on going .I'll pray for your health an they give you a liver in the next few days xx gods speed whoever you believe in ,your a very determined and brave guy because your Not giving in an keep pushing them to change their minds .Don't go anywhere without that will to survive an fight against these guys to get your new liver.Things can change MATE in YOUR favour too xxXXXX WELL WISHES TO YOU HUN XX Hugs too.mwa

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