I was diagnosed with NAFLD a year ago after an ultrasound scan following on from high liver function blood tests. Over the last year I’ve lost 3 stone in weight, steadily and consistently, but my LFTs keep rising (all 2,3,4 and even 5 times normal in the case of my GGT!) my latest bloods this week however have stayed the same as they were when last done in September which was something - no improvement still but at least no rise! However my cholesterol is high and has increased from 5 to 6 since October, as well as all of the other lipid blood tests. I am awaiting a phone consultation in just over a week with a GP to discuss as I’m basically fed up of watching my results get worse and worse, worrying about long term damage as this has been going on for the last 12 months, whilst being told this is nothing to worry about just lose weight (I’ve read 5-10% loss in body weight should help - I’ve lost 20%), and resembling a pin cushion because every time I ask for advice or information or plan of action they just take more bloods and nothing more gets done and no further advice or support. A fibro scan was suggested at one point but apparently I don’t meet the criteria!
So I was wondering if anyone else has NAFLD and has any positive success stories? How much weight loss and how soon after losing weight was there any improvement? Any positive stories would be much appreciated, thank you!
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Belle92
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You have worked so hard to improve matters from your side of things. However, 1 year on, with your GP conversation next week impending, maybe it is time (before then) to check-in with The British Liver Trust Nurse-Led Helpline?:
- as much as anything; to double-check: whether their experience suggests you are on the correct referral / non-referral to an Hepatology Clinic pathway?
I believe the Helpline will likely be able to help you with proactively understanding / then planning self-advocacy of applying national guidelines as appropriate - if there were to be any doubt about your lack of referral to date - to help you know what you might decide that you want to discuss with your GP (to aid a two-way conversation).
I have used the Helpline myself - it was good to feel someone neutral and objective, yet more knowledgeable, was supporting me in my learning and thinking (it can help to instill self-confidence when interacting with subsequent Clinicians - as you can be less blind-sided by concepts / terminology / risk considerations / asserting patient preferences - as your Helpline discussion can act a sort of "practice run" for a later dialogue with Clinicians involved in supporting your liver health journey).
Thank you for your helpful reply, it's much appreciated. I have been reading some of the stories on the British Liver Trust website, it's so good to read others experiences and to feel like I'm not alone in this.
Thank you for your suggestion re the nurse helpline - I will definitely give them a call - I think it would definitely help me to understand everything a bit more and help me to make the most out of my GP appointment so I know what I need to discuss and ask about, and hopefully gain more advice and understanding rather than just having blood test after blood test.
Hi. I would definitely push for the fibroscan. At this point I'd consider whether there could be other causes for those blood tests (assuming you drink no alcohol) like autoimmune liver disease, a hepatitis virus like B or C, Hemochromatosis, exposure to chemicals through work or home, as a few examples. These can be assessed through further testing. If you are in the UK, a call to the British Liver Trust nurse hotline might be very helpful. Best wishes for answers and health.
Thank you. I did have additional liver bloods done over a year ago to check - will need to confirm with my GP but I believe it was hepatitis screening and were negative. I will ask about chemical exposure but I’m not aware I’ve been exposed to anything harmful?
Thank you, I definitely think a call to the helpline next week will be beneficial.
Apparently my blood tests aren’t high enough to suspect fibrosis? I don’t understand it myself, and yeah that’s what it feels like to me that they’ve just put it all down to weight - I’ve lost 3 stone, don’t drink alcohol or fizzy drinks etc, and have always had a balanced diet with lots of fruit and veg so surely if it was purely weight related then there would be at least some improvement in my blood tests? I did have an ultrasound a year ago but I wasn’t told anything when she scanned me and my GP diagnosed fatty liver. Hopefully this next appointment with her will be more productive!
Thank you for your reply, it’s so great to hear from others and definitely feeling less alone,
I was given a fibroscan after my ultrasound (done unrelated to liver) showed fatty liver. I had normal blood tests and no liver symptoms. My fibroscan showed 7.5 kPa which is just over the upper limit of 7 for normal range. So I do indeed have a bit of scarring. My GI thinks it can resolve with weight loss and exercise which is well underway. I don't drink. I have a family history of fatty liver in non-drinkers. I am in the US and lucky to be near major teaching hospitals here.
I do this for peace of mind now and to keep an eye on things.. I personally think a couple of hundred quid a year is very reasonable for this..
It might be something you want to look into.
Weight loss is good btw, and well done for achieving yours. My consultant says that overall bmi is the driving force and anything over the 'normal' range will cause fatty infiltration.. clinical obesity in general will likely be in the S2/3 range..
I am so tempted to look into going private - the money is nothing compared to peace of mind and health. I am in the overweight category but because I’m only 5” tall I’ve been told not to focus too much on BMI and work on getting my weight down as much as I can and eat healthily.
Thank you for your reply, it’s so good to hear from others- definitely feeling more positive!
My gastroenterologist feels the same about BMI. I am between 26-27 now and she wants me below 25. I am also trying to lower my percent body fat with strengthening exercises. Anything to get rid of excess fat.
I was diagnosed with liver disease in September 2024. I was shocked snd scared, as you are. I do not drink and I eat a clean diet-Mediterranean. I also do not take any prescription medicines. My liver enzymes were elevated. (For 2 years). I finally found a gastroenterologist who did numerous tests to rule out any hepatitis or other concerns. I had gained weight after a near fatal car accident. My doctor and I came to the conclusion that my weight was the concerning factor. I was always 100 pounds to 125 pounds and I had gotten to 180 pounds. I now am at 153 pounds with 30 more to go. My liver enzymes are back to normal. But, that is not the only indication that my liver scarring is reversing. I will have another fibroscan in May. (6 months). By then I should be down more weight and we will assess where I am at that time.
I truly believe the weight loss is the key to my liver disease. My GI doctor told me that the new medicine out - Rezdiffra- could lower my scarring but that losing weight and exercising would do the same. But, as he stated, I would need to be very diligent with a plan to lose weight and exercise. I have been doing just that.
I feel you should get a Fibroscan to see just where your numbers are. I also had an MRI which showed mild scarring where the Fibroscan showed moderate.
Get all your tests, continue to lose weight by diet and exercise and monitor it closely either your doctor. I know you should be able to reverse your fatty liver by continuing your diet and exercising. Prepare meals on Sunday’s so the week is easier and manageable.
Thank you so much for sharing your story. That’s amazing you’ve been able to get your liver enzymes back to normal and I hope your next scan goes well! I’m trying to exercise as much as I can and as a minimum daily walks but I’ve been struggling with chronic fatigue for the past two years (unsure if long Covid or liver related - it was blood tests looking into the fatigue that picked up the high lfts) so exercise isn’t easy! I agree with meal preps for sure! Batch cooking and my slow cooker and soup blender are my lifeline for healthy eating!
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