one day at a time

[Allotmentlotty]

hi.

I was diagnosed 2 years ago by GP. Referred to Hepatology. Took 11 months for Fibro scan and was told that day it was Cirrhosis. None alcohol.

I’ve never been a big drinker just on occasions.

Cut out adding salt 42 years ago when pregnant with first baby. Grow All our own vegetables as we have allotment Diet is practically no fat healthy Diet. But still I gain weight.

I have days when all I want is sleep my can’t be arsed head rules then I’m afraid.

It took me 6 months to come to terms with the situation I found myself in. My husband is great he’s read the cirrhosis notes on Liver trust site and is my crutch.

he understands I need space even before I do.

my next 6 month checkup Scan Bloods. Are due next week and fingers crossed nothing has changed although I have noticed slight changes tingling is getting worse. Dry skin. Headaches. earache. Tummy is bigger. And fatigue is more often.

i am not a winter person and feel the cold even more nowadays.

bring on the spring so I can potter around at allotment.

I keep my brain active by adult colouring which definitely helps.

we have a giant Breed dog Leonberger. So I get out for walks every other day. Husband bless him goes every day in all weather.

I am 68 tomorrow and I never in my wildest dreams thought I would get ill. I’ve always been fit and healthy how I got Cirrhosis to me is still a mystery.

have a great day everyone. Live for each day. Stay positive. Look forward to better days ahead.

[Smegmer]

Sorry to hear of your shock diagnosis. You did everything right and still got ill, are they going to perform tests to find out what the cause is? Although it doesn't change the issue, surely they need to know the cause to find the best treatments for you.

It could possibly be an autoimmune disease that has since become dormant, sometimes, they never find out though.

[Allotmentlotty in reply to Smegmer]

Thank you for your reply.

I see my consultant in February after my tests. I will be able to ask questions about it. When I had my initial appointment I was in shock. This time I will have someone with me to help me along.

[Smegmer in reply to Allotmentlotty]

Some find it helpful to write down some questions before a consultant visit and write the answers down.

Some ideas:

1) What is the cause of the Cirrhosis and is it ongoing?

2) What is the condition of my liver? How is it performing? What is the MELD score?

3) What treatments are available?

[Millie09]

Thank you! you sound like your doing well , day to day with cirrhosis is like a rollercoaster ride . Was diagnosed 16 years ago and I cannot still believe I'm still here!! .mine was alcohol related, I too try my best to stay active although I do have other illness besides cirrhosis, Osteoarthritis in my left hip and knee and lumbar spine, neuropathy in both legs so takes it toll ,most days I'm asleep by 4pm , I just nod off as most of my energy is zapped by then . I have 3 crazy cats whom keep me company and I love to bits ,I read , follow the news daily, I went on holiday last year and going away again this June.. I'm 63 in March yet my head is still in its youth lol .. we can but do our best .. keep up the good work 👏.. Linda x

[Allotmentlotty in reply to Millie09]

I also have osteoarthritis. Sleep Apnea. Type 2 Diabetes. And recently diagnosed with asthma.

Some days are a real struggle but I try hard to carry on. Listening to my body is the way forward. What I can do one day I can’t do the next

[Millie09 in reply to Allotmentlotty]

Yes im pre diabetes, asthma etc.. like you I have to manage on a day to day basis but you are doing great x

[Allotmentlotty in reply to Millie09]

Thank you. It’s reassuring that after all the time you have been diagnosed your still fighting on. So well done you. X

[Millie09 in reply to Allotmentlotty]

Thank you so much xx