Log in
British Liver Trust
14,428 members β€’ 7,125 posts

Which side u sitting on!

This post is to say that social services ,mental Health,GP, specialistists,

if like myself you ain't getting help , I am not going over and over my ,and today another knock back social services ,I'm feeling like I don't wanna feel , but I'm asking them all to assess the situation and do it now you sit on this chair and be me experience what I fear in isolation ,More serious issue is they can walk away when ur left in sh.. ,

I have to live with me a have to be with me in a constant fear of myself I don't want to do in haste repent at leisure , with me ADHD mentally .

Not everyone gets crap treatment it's not even the at as I'm drained and despare every day,

But I do no that they also are overworked and under paid !

21 Replies
oldest β€’ newest

Oh how i know how you feel. I have no complaints with my hepatologist or the hospital but my god is it a struggle these days to even get a ring back from your doctor.. worst still assesment from occupational therapist as my mobility is not good and where i live now is not suitable due to all the steps outside and the fact i am living next to utter ##### heads dont help πŸ˜‚

3 likes
Reply

How do you cope with your mobility. I really struggle with having fibromyalgia and also collapsed arches in my feet!! Coping with my liver is bad enough without everything else too. I have to keep smiling, I know there are people worse than me. Hope you feel better soon xxxx

2 likes
Reply

Hi lynne, my daughter hasfibromyalgia shes 37 and has 3 children. She has good and bad days...

I have late stage osteopenia in the hip with abnormal bone growth around it ..also degeneration sclerosis of the bone in my hip.. waiting for results of double mri scan. I cant take any pain killers other than paracetamol which do not work so i use heat packs or hot water bottle. The only way i can manage it is not to do much.

I cant lift heavy items.i have home delivery too. It gets me down and i can so feel what you are going through πŸ˜•. I now have a walking stick and getting in a bath is impossible as i cant get out. Besides that my back and lower region has lost all muscle so it really hurts to lie down .i just get on day by day .. not much i can do untill it gets that bad i will need hip replacement... aa if we dont have enough to deal with already.. try to think positive lynne..i know how hard it is but every day i wake i am thankful

Love linda xxx

1 like
Reply

Thank you so much for your kind words. You are a remarkable lady. Please take care. Lots of love Lynne xxxx

1 like
Reply

Hi

Are you still managing to work xxxx

Reply

No , i dont work lynne, haven't done now for a couple of years. I would love to but i would need a sit down job that is 5 mins away and has a bed for me to nod off lol. Impossible..xxx

2 likes
Reply

I work part time but I'm finding it very hard xxxx

Reply

In my depth of hell in laugh ting as that is exactly what I said just to leave house need bed as can't stand walk to the kitchen without getting pain tired ,thanks that's me to a t and thanku cheering me up

Reply

Bless you lynne, i am just little old me.. nothing special.. you are stronger than you think and such a kind hearted, caring lady yourself

You take care and if you need to chat you can pm me anytime.. love and (hugs ) linda xxx

1 like
Reply

Thank you so much xxxx

1 like
Reply

I had hip replacement 13months ago could not walk for yr in bed as I had the same bone growths that had knocked away pelivis the pain alone can drive you to insanity without pain killers or anti inflammatory

Hip replacement fantastic as in the pain Over Rides the fear and I am fine I got pain but I got osteoarthritis DDD , meningoma head and calcium deep in chest a lot of er things but I never thought I would get threw it I did and you will .

1 like
Reply

Hi faithful. Sorry for late reply.one of weeks .

Well i had results of my mri scan. I now have the onset of osteoarthritis and they hace found i have prolapsed disc at bottom of spine with some oedema? . Have been told surgery is required. My hips are the same .slight further change is bone degeneration.

I bet that hip replacement was a relief to you xx .hope you are ok anyway hun. Xxx another two days constant phone calls .trying to move from.my private rented first floor flat to social housing ground floor flat.. absolute joke 😀

Reply

So am I trying fighting 2yrs day in day out to get out of this hell hole sorry but being ill hating the so called home no help they think I can use public transport. I no its not helping us it rerral to get no if u have a life long illness as I got ostioarthritus spinal stenosis they give nothing the visits costing them more

Reply

They told me I have life long illnesses and talking to GP on phone is joke they think I'm drunk I stutter bad on phone there be doing a face time one next and quick easy to follow DIY OPERATIONS AND LEARN YOUR PHYCIO

MENT TO PUT physic you no what I mean

1 like
Reply

So do i faithfull. What with all my hip and back problems; my end stage f4 fibrosis with mild hepatic encephalopathy and insomnia yet lethargic i dont know what im doing now i have no support worker due to the funding being stopped. No wonder we are banging our heads uo a brick wall !! Xxx

1 like
Reply

It's like the torcher of asking all I do is sleep bit in day I still don't no what's exactly wrong as micro hepatic cirrhosis went casualty said nothing wrong with me I did go PHYCIO as I thought I must be cured I no I ain't it's no funds 5min in casualty 5hours wait.

1 like
Reply

Yes i know how yoy feel. I will know more when i see my consultant on 25 jan.

I think its just the way things are to be honest. The NHS is struggling so that gives a knock on effect to all of us

1 like
Reply

Same day as me that's freaked me out as no sleep all night and it's like both got same things I got osteoarthritis ain't even under a dr for it , well not literally !

Lol. Sorry about that it's no sleep again it's two hours a day if that . Then after weeks I sleep constant but I'm tired cannot be bothered to wash I don't no ways causing this but I never leave house don't get any days out just hospital but to tired by time I had bath I have to lay down its hell cant do thing .

1 like
Reply

Wow ! So we both see the consultant on 25th !! .. well i dont think much can be done with arthritis , the only reason i am going is due to my hip and now two prolapsed discs.

Sleep derivation is awful. I am still awake at 5am watching tv in the living room .bet my electricity and gas bills will be high lol.

We all seem to have the same issues faithful..so your not on your own .hope things improve. Love linda xx

1 like
Reply

Oh I got the useless hip Doctor tommorra14. Months after tol talks hip replacement and cement but my back is bad spinal stenosis I had prolapse disc removed years ago but stomach bloated again feel ill and can't be arsed to go as he left me to long for op that's why I'm not walking far, and I no exactly what you mean having bath is roughy the most hard then to get ready I have to lay down inbetween it's hell I no all my best wishes and love to you and family

Reply

Oh you are getting up when I usually go bed,strange seems like we are mirror image of each other's illness and least we no the same pain is worse than childbirth at least theirs something good at the end of that pain it's when they grow up is another pain

Reply

You may also like...