Scared: Im 25 with cirrhosis and... - British Liver Trust

British Liver Trust

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Scared

james_92 profile image
5 Replies

Im 25 with cirrhosis and hepatitis c i was admitted to hospital on christmas eve as i was yellow all over (jaundice) i was in icu for low potassium and pulled through i only had one scan on my liver and was pumped full of god knows what and released home after 10 days with a arsenal of medication... calcichew 1 daily folic acid 1 daily rifamixin 2 a day 3 ursodeoxycholic 250 mg thiamine 100g 3 a day vitamin b 3 a day and creon capsules 400mg 9 a day now i havent been reviewed in a while and im having to wait 6-8 weeks to get seen ive had no problems no pain no lack of energy im scared of whats in store for my future i have a loving partner and a beautiful 1 year old daughter its worth noting ive been sober since and have no urges id love to chat to someone thanks

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5 Replies
jojokarak profile image
jojokarak

Hi James sorry to hear about your troubles but fantastic you have stopped drinking and even better you haven't got many symptoms. The consultants do just monitor you every 6-9 months and unless you start displaying symptoms or your bloods are not right they will just let you get on with life so if you can just enjoy life anything you need to know just ask 😃

james_92 profile image
james_92 in reply tojojokarak

i feel at ease now thankyou jojokarak i hardly no anything about my condition im glad i found this place

Hey

Sounds like they're fairly aware of what's going on so hopefully you shouldn't run into any big problems. I thought there is a cure for Hepatitis C?

I would recommend you watch your diet and preferably no drinking. I'm sure you'll be ok.

Good luck!

james_92 profile image
james_92 in reply to

see that's news to me i really am clueless i changed to a plant based diet as soon as i left hospital (advice from friend) to give my body the nutrition it lacked after 6 months of nothing but booze

Hi,

Welcome to the forum.

It sounds like you need your doctors to explain much more about your liver conditions. Can you make an appointment with them to ask for more information?

The British Liver Trust has a lot of additional general information that you may find useful to read.

Here is the link to our information on cirrhosis of the liver;

britishlivertrust.org.uk/li...

and also our publication on Hepatitis C;

britishlivertrust.org.uk/wp...

With regards to your comments on diet, There are some special considerations that people with liver disease may need to make in their diet to stay nutritionally well and to help to manage their condition. Some of these are specific to certain liver diseases, others relate to how advanced the liver disease is.

It would therefore be advisable to obtain specialist dietary advice from your liver specialist in the first instance. They can then also refer you on to a hospital registered dietitan for more guidance.

We hope that you find the forum a supportive place to vist,

Best wishes,

BLT

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