Hi, new here so hoping I'm posting in the right section....
My brother who lives with me and my partner is a recovering alcoholic he had been drinking heavily for a good number of years. He has been extremely ill over the last 5 years with cirrhosis, ascites build up, HE, 2 occasions of Spontaneous Bacterial Peritonits which very nearly killed him. He has all the known issues that come hand in hand with liver disease. His ascites build up is awful to see and has spread down to his scrotum which is the size of a large melon.
When he had his episode of HE it was horrendous, the hospital sent him home to us with his HE and left us to care for him 24 hours a day for 5 days. I finally managed to get him into hospital after he had a bad fall and split his head open. Three days earlier he fell and cut open his back. I called the doctor and he came to the house to check him but my brother refused to go to hospital so he was just left.
My brother will not tell me everything medical and I'm left to search the internet for answers to symptoms.
He has (this morning) been refused to be added to the liver transplant list because of his past drinking habits. Hes been in hospital for the last 2 weeks and to start with we were not aware of why he was going into hospital as he never said. He finaly told us as he was told by the doctors they would need to speak to family.
I get no help and struggle to cope with his deteriorating health, he can't do basic hygiene like wash or shower and urinates in bottles. His room is a shocking stinking mess, I'm not allowed to clean his room as he says it's his private place (my house)
I've been in touch with our local integrated alcohol social work department but still waiting for a call back, they arrange a time to call me but it never happens.
My brother has terrible issues walking due to back pain, sometimes he would screen in pain. The doctors and hospital were aware and he was sent for xrays months and months ago - we were only advised yesterday he has a fractured bone in his spine and no one had told him. He was only advised to take painkillers and rest.
I'm his next of kin and I'm desperate for answers and to know where we are at, what happens next and who can help us but I don't know who to ask.
I'm not sure if anyone can offer advised but it writing it all down helps me