Newbie here. My ex husband has just been turned down for liver transplant after 3 weeks assessment. His ukeld score is 65. He s unlikely to survive much longer as has been on borrowed time since last year when we were told he was terminal. He has every symptom going ascites, HE, jaundice, low platelets low sodium anaemia etc.his gait is unsteady and he mobilises with a Zimmer now. He is 60 years old. His grown up children are struggling to cope with him as he's very dependent on theirs and my help. He is an alcoholic but has not drank for about a year now. I think the decision not to put him on the list was based on fears that he would not remain abstinent after a new liver as he has continued to drink non alcoholic beer and cider. I think this went against him and the fact that he did not engage with any counselling that was offered by his hepatology consultant and it does mention this in his notes. He also previously twice had varicies banded but did not stop drinking after that either.
I can understand the decision but am annoyed that the liver team have not told him the outcome and he mentioned to me that he was surprised he did not come home with a pager! I only know he's been refused as I rang the ward where he was an inpatient. How on earth do I tell him? Has anyone else been refused on these grounds?