Anyone here have PBC and have right upper quadrant pain? I had this years before being diagnosed with PBC this year and was always sent to a gastroenterologist who diagnosed me with IBS which I don't have and referred my self to a liver doctor I am glad I did as she diagnosed me with the PBC. Always follow your gut no pun intended!
I have noticed upon complaining about this pain to my liver doctor and her team that it is not acknowledged meaning they told me to see the gastroenterologist again which I refuse because she then tells me to take medication for it but it never helps and it is dangerous to take unnecessary meds if you have liver diseases.
I called the American a Liver Foubdstion and asked their customer service rep about information on the liver area pain that I did not find it in their literature anywhere she said, you are right we don't have it documented/listed anywhere. I asked her to please talk to the manager there to have it listed as I have it and it sent me to the diagnosis I have and so many people have right upper quadrant pain are denied by many that they have it even by their own doctors, this makes a person feel very confused and wondering why this is not acknowledged by their own physicians.
I myself have been sent to many other doctors for this liver area pain and still end up back to the liver doctor, I am not drug seeking, just needing to have the pain acknowledged by the liver doctors . I would never take a pain med so this is not my motive at all....
I am asking the ALF to put right upper quadrant pain in the information packets they send patients and on their online site as people need to see it is common in liver disease, as it is other health conditions .
Thoughts everyone and please leave your diagnosis and do you have liver area pain ?
I am going to take my numbers from your answers and ask all the liver foundations to please list it so people have some comfort in knowing they aren't crazy as many have been made to feel by their care team.