First, thanks everyone for your post remaks and kind messages.
I'm so so very great full for this forum and the community of amazing souls on here.
The surgery went great! I think? Lol. I was released yesterday afternoon.
I had a drain Tuesday to prep, and then Wednesday morning I went into theatre at Addenbrookes. I've been there so much, and knew almost all of the team, including one of the doctors. So there were hugs and laughing, chatting, etc.
Surgery was about 2.5 hours or so.
The next day the sonogram read that the shunt was all clear and no new fluid in any of the cavaties thus far. No confusion. (At least, I don't think there is any? Lolol)
I was told around 11% of patients had ascites post transplant. I was also told that what I have, this type of portal hypertension in a liver post transplant is so rare, they have only seen one other case in over a decade, and it did not even have a name for it! Wow! Leave it to me to be the girl with the really cool rare liver problem! I feel like a rockstar! I mean, as far as livers go! Ha! My portal hypertension is caused by the small tributary veins throughout my liver having blockages from blood clots occurring.
In many cases it is from there being varying pressures between the hepatic and portal veins in the liver. Although I have some of that also, it is not causing the blood clots. My hepatic pressure prior to surgery was 31. After surgery it dropped to 21.
Anyway, if I don't rely to all my messages, please forgive me. I'm still just getting settled..
I will say this..so far, I feel pretty good. I don't know if it's magical thinking because there's no way to see results this fast, but, the ascites has been the Bain of my existence for a few years now. It's been so bad, so painful and so tiring..that right now, having no fluid and not feeling like it's coming on in any way is just great!
This whole quality of life thing is a pretty big deal. I'm just so tired of being tired, and feeling wretched. So I am hoping, against all odds, that this shunt will work!
So I can have a life, until the next turn.
Love all of you, and thankful, so thankful for being able to come here and talk about all the things I can't talk about anywhere else.
Cheering all of you on!
Your American Pickle!