Hi all. I just wanted to share my experience as i'm desperately trying to make sense of my symptoms and am utterly terrified i've damaged my liver.
I'm 33 and drank on and off heavily through my 20's. I had anorexia in my mid 20's for a couple of years so didn't drink at all through this time but I did have a raised ALT during this period though the doctor at the time said it was just from anorexia and would get better so I don't think it ever got followed up. I then developed nausea shortly after the birth of my son 3 years ago and went to see the GP, at this time I was drinking small to moderate amounts and had high ALT. I stopped drinking and my enzymes returned to normal but then I developed constant right upper quadrant pain. Things had improved a little a year later and so I tried drinking small amounts again no more than a few units a week, but then developed intense right upper quadrant pain and went back to the GP, again my enzymes were raised. I stopped drinking completely then and haven't drunk since and my enzymes have always been normal but the pain hasn't improved. It goes through periods of being better and worse but it's stabbing and really unpleasant. I also get migraines, unexplained fevers, flitting joint pain and hair loss, as well as my periods have become very strange..they are regular but very long about 10-12 days and if I have even half a glass of wine I feel awful for days...sick/pain/headache.
All my blood work is normal so despite going back to the GP masses of times they've said there can't be anything wrong. So i've paid to see a couple of private herpetologists over the last few years as well. They've done hepatitis/autoimmune screening etc and again everything normal. I've had two normal ultrasounds and my fibroscans were 3.3kpa in 2013, 4.1kpa in 2014, 3.1kpa in 2015 and I had a shearwave US instead of fibroscan this year which was 5.6kpa. I'm petrified that these are readings are false negatives because my enzymes are normal and so I don't have any disease activity at the moment and that I actually have cirrhosis. I just wondered if anyone else had experienced a false negative on fibroscan or if anyone had had these symptoms and had a biopsy that was ok. I'm so scared i've damaged my liver and that I won't be here to look after my children. So if anyone has any stories please share.