Hi, I'm new here and this is my first post. I wish I'd found this site and forum years ago!
I was diagnosed with PBC eight years ago and have been taking Ursodiol ever since. A Fibroscan showed cirrhosis at that time with a reading of 35 kPa. I had scans every two years since then until my last reading in 2018 when my reading was down to 10.5 (which apparently is right on the border of stage 2 and stage 3 fibrosis, to my understanding). My liver enzymes returned to normal within about a year and last time I saw my gastroenterologist three years ago he commented that my twice yearly bloodwork looks completely normal, as if I don't have any disease at all.
I have had ultrasounds twice a year since 2013 (except for last year due to Covid). I never heard about the results so I assumed that the ultrasound results matched the Fibroscan results. However I recently got a new doctor and he phoned me with the ultrasound results...he told he I have cirrhosis. In a bit of a panic, I called my gastroenterologist to ask why my ultrasound shows cirrhosis and the last Fibroscan I had shows stage 2-3 fibrosis. Which is correct? He told me that the Fibroscan is more accurate but I just can't get over the ultrasounds showing that I have cirrhosis (and have apparently they've showed this all along). I also have two small benign cysts on my liver.
Of course I've been researching like crazy ever since because the whole thing seems odd to me. Stage 2 fibrosis is a long way off from cirrhosis! I've read that Fibroscans show liver stiffness, but can they detect structural damage to the liver? I'm just confused about what stage I'm at. Are Fibroscans more accurate than ultrasounds, or do they just show different things? I'd love some feedback. Thank you!