Just wanted to let you know that Terry was put on the transplant list on Monday 6th June (D-DAY). We obviously understand that it could be a long wait but it's given us a bit of hope. Terry is blood group B which is not common so that's another obstacle but we are staying focused. Just have to try & keep him as fit & healthy as possible now. That's easier said than done !
Love to all.xx
Written by
h0b0
To view profiles and participate in discussions please or .
18 Replies
β’
That is such good news to give you renewed hope.π. Group B isn't rare, just not as common as A or O, the red cross site has some great info on blood groups. Please try not to get too hung up on blood groups.
Is he on the priority list? I seem to remember that he has been in hospital a few times.
This is a difficult time for you all I know, having to play the waiting game. Is he able to exercise at all? Whilst I was waiting, I bought a reclined exersise bike which I used every day, no matter how poorly I felt. I'm sure that, that and the ensure protein drinks I was having helped enormously with my recovery post transplant.
Stay strong, we're always here for you on this page.
Aw thanks Mike. The co-ordinator did say that B livers are quite rare but also that less recipients waiting so evens out. Also, if he got considerably worse they could use an O liver.
He's not priority but after taking bloods Monday they did ring Tuesday to say he's moved up to Regional listing.
The really annoying bit is that since Monday I have been getting shed loads of telesales calls ((even though have TPS) but I need to answer every call from now on.
Thanks. Mal.xx
That's fantastic news. Wishing you lots of luck. Xx
Good luck to you and your oh I was told that sometimes a rarer blood type is a benefit as the waiting list is shorter. I was an A which isn't as rare but only waited 4 weeks. It's just so unpredictable but hopefully the right one will be offered soon. Xx
Don't want to give you false hope but waiting can be within a short time. So be prepared from now on. Have your hospital bag ready. I had twenty minutes to get all my stuff ready as the phone call came at 8am two weeks after being listed. The ambulance was already outside waiting. So be prepared !
Thats good to hear. Although I dont think you ever know how you'll feel until when you actually get the call. Mine was disbelief, fear and anxiety all mixed up with relief and a hint of the excitement of starting a new journey into the unknown. I enjoyed the blue lights and sirens of the ambulance pushing the busy morning London traffic out of the way ! Jim
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.