Listed at Last: Hi All, Just wanted to... - British Liver Trust

British Liver Trust

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Listed at Last

h0b0 profile image
h0b0
18 Replies

Hi All,

Just wanted to let you know that Terry was put on the transplant list on Monday 6th June (D-DAY). We obviously understand that it could be a long wait but it's given us a bit of hope. Terry is blood group B which is not common so that's another obstacle but we are staying focused. Just have to try & keep him as fit & healthy as possible now. That's easier said than done !

Love to all.xx

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h0b0
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18 Replies

That is such good news to give you renewed hope.😀. Group B isn't rare, just not as common as A or O, the red cross site has some great info on blood groups. Please try not to get too hung up on blood groups.

Is he on the priority list? I seem to remember that he has been in hospital a few times.

This is a difficult time for you all I know, having to play the waiting game. Is he able to exercise at all? Whilst I was waiting, I bought a reclined exersise bike which I used every day, no matter how poorly I felt. I'm sure that, that and the ensure protein drinks I was having helped enormously with my recovery post transplant.

Stay strong, we're always here for you on this page.

Mike XX

h0b0 profile image
h0b0 in reply to

Aw thanks Mike. The co-ordinator did say that B livers are quite rare but also that less recipients waiting so evens out. Also, if he got considerably worse they could use an O liver.

He's not priority but after taking bloods Monday they did ring Tuesday to say he's moved up to Regional listing.

The really annoying bit is that since Monday I have been getting shed loads of telesales calls ((even though have TPS) but I need to answer every call from now on.

Thanks. Mal.xx

That's fantastic news. Wishing you lots of luck. Xx

h0b0 profile image
h0b0

many many thanx.xx

White-feather profile image
White-feather

Yeeeeeeeeeaaaaaaaaaaaahhhhhhhhhhh!! ☺☺☺☺☺☺☺☺☺☺

SO PLEASED!! 😀😀😀😀😀😀😀😀😀😀😀😀😀😀😀

Fantastic news h0b0 😘😘😘😘

The very best of luck to you both 💙

Don't forget to look after yourself too! 🍀

h0b0 profile image
h0b0 in reply to White-feather

Will do my best. Thanks for your kindness.xx

Robbo_c profile image
Robbo_c

Great news! Hope a suitable liver comes up soon! x

h0b0 profile image
h0b0 in reply to Robbo_c

Thank you sooo much. xx

Fantastic news, best wishes x

h0b0 profile image
h0b0 in reply to

thank you.xx

Alicja_mb profile image
Alicja_mb

Good luck to you and your oh :-) I was told that sometimes a rarer blood type is a benefit as the waiting list is shorter. I was an A which isn't as rare but only waited 4 weeks. It's just so unpredictable but hopefully the right one will be offered soon. Xx

h0b0 profile image
h0b0 in reply to Alicja_mb

Let's hope so xx

BIG hug from México, it will be alright!!!

h0b0 profile image
h0b0 in reply to

Thank you.xx

LAJ123 profile image
LAJ123

Don't want to give you false hope but waiting can be within a short time. So be prepared from now on. Have your hospital bag ready. I had twenty minutes to get all my stuff ready as the phone call came at 8am two weeks after being listed. The ambulance was already outside waiting. So be prepared !

h0b0 profile image
h0b0 in reply to LAJ123

Not false hope but hope ! Thank you so much. We've been "READY" for months..xx

LAJ123 profile image
LAJ123

Thats good to hear. Although I dont think you ever know how you'll feel until when you actually get the call. Mine was disbelief, fear and anxiety all mixed up with relief and a hint of the excitement of starting a new journey into the unknown. I enjoyed the blue lights and sirens of the ambulance pushing the busy morning London traffic out of the way ! Jim

h0b0 profile image
h0b0 in reply to LAJ123

Thanks . That's very reassuring.xx

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