It all began with non alcohol related chronic pancreatis, pseudo cysts and now necrosis. However he has not become diabetic, he has a blockage in his bile ducts, an enlarged spleen, ascites, and sever varaces in his oesophagus caused by portal vein thrombosis and fatty liver. (he has factor V clotting mutation which runs in our family) We are constantly being told that he is a very unusual case and presented with many complications. Furthermore we have now been told that nothing can be done. His duodenum is too rigid and an attempt to insert a stent to relieve his bile ducts was unsuccessful. No operations are possible due to the high risk of bleeding as the varaces are likely to be present throughout his digestive system. In the mean time his liver is being damaged further, increasingly so because if the bile duct blockage and PVT combined, it's a vicious circle. His doctor was surprised at the extent of damage to his liver and has now said that no operation would be done unless the risk to live becomes greater than the risk of bleeding and no liver transplant will be possible at any point due to the severity of the PVT clot, no vein to connect a new liver to. The medics have told us that there is no way to remove the PVT blood clot and that his liver is expected to deteriorate. This is so shocking and heartbreaking to think of, as his daughter. I'm clutching at straws trying to find anything we can do that could help, hes finally got a referral to see a dietitian but she provided no advise and said she wasn't sure why he had been referred to her, despite the obvious impact that nutrition and diet can have on these organs. I'm desperately seeing any other options while we still have time and would be grateful if any help or advice.