Everything is wrong

[shirley29485]

I am so sick of chronic illness..depressing, pain after pain it's all neverending. I try to keep positive. But I am finding this very difficult at this point. In 1 year I have been diagnosed with everything chronic..how can people keep going like this...aughhhh..so fed up..

[angse]

Hi Shirley yes I know its very difficult, to adjust if that's the right word, you should have known me 18 months ago when I was diagnosed with cirrohiss, I was a wreck waiting to pop off any second, then 1 month after first endoscopy I had massive GI bleed losing 5 pints blood, my life was saved, and I thought I have got to deal with this, and that is all you can do really try to live and eat healthy, exercise if possible every day even half hour walk, better than nothing, good luck try to be positive hard as it is. Annette

[shirley29485 in reply to angse]

Thank you for your support..I'm trying to work through it. I have autoimmune disease, PCB, Bronchiectasis, MAC Mini strokes, Barretts Disease and um at 3 positive. .This in a few months..still have biopsy. and new treatment coming up..aughhhh so much

[Hidden]

I know How you feel so many of us with chronic illness but still we have to see the positive side of life you have a family, so I hope they give you support and love.

Life isn't about what you can't do, it is about what you can do.

I don't know what your interests are in life, but get out there and do something. (again I realise it is difficult)

we either give in, or fight to the bitter end.

Try to enjoy every day, plan something for the next so you have something to look forward to.

there is just so much out there to do.

I wish you all the best. Don't give in!

[Dorset123]

It is so wearing living with pain everyday....Took me best part of a year to even try to come to terms with having cirrhosis(took months to 'settle'on a diagnosis). My closest family & friends say I looked like I was broken!! Have since tried to get some control back in my life.

I am still trying to run a busy small company, but I know I am not as sharp as I was & sometimes have to listen to my body & have a rest. I have tried acupuncture for the pain & more positive thinking. I find it really helps, maybe just because you are doing something positive to take your life back.

Otherwise....the same old...eat healthy, try & stay fit (swimming is great...seems to ease the pain under the ribs away) & live life..........went to my daughter's graduation yesterday...brilliant day.

Good luck ....don't let this grind you down!!!

[Bolly]

Having a reason to get up each morning helps - a partner, a child, a dog, a cat, a job, voluntary work, anything or anyone else that is expecting to see you that day, grumpy, groggy or not.

[shirley29485 in reply to Bolly]

It's getting to that point..right now I'm physically weak..emotionally trying to sink it all in...hope Mondays biopsy gives us more answers..

[shirley29485]

You guys are awesome. .thanks for the rant of depression. .I am working on getting through..typically I don't have a choice..lots to do..

[bam1993]

Hi just seen your post, and just wanted to say that I totally understand.....Chronic illness sucks!!!!!!!!!!!!!!!! I have Lupus and possible AIH (awaiting results of biopsy that I had done on 15th Sept) But I have probably had more time to come to terms with my illness-was finally diagnosed with Lupus at the of 2012 although looking back I have been suffering (then it was more off than on) since about 1999/2000- In 2008 I was told it was Fibromyalgia- but all of the treatment they gave never did any good - and my pain just got worse and worse.

I have finally now surrendered-I had a meeting at work yesterday about how we are going to 'move forward' (I have been of sick since mid July-due to my latest Lupus flare and the biopsy)- I was only doing 3 days a week anyway (I have been with the company 11 years and up until last July was working a 48hour week in the factory) then moved into the canteen on much reduced money and hours-but I was just thankful that I was still working.

My lastest set back has totally knocked me for six......so, as I say I have surrendered....my health is so much more important than being able to say 'yes I work'....I don't know what is going to happen yet but I think they will 'let me go', and actually that is okay with me-I can then concentrate on resting if I need to and hopefully getting some strength back. When we first become ill I think we have to go through a 'grieving' process and it does take time to accept everything-it looks like you have had it thrown at you all at once, and it is going to take timefor you to adjust-but you MUST put your health first-if you need to rest-then rest, if you are in pain then tell people (often with Auto immune the pain is not obvious - people with a temporary broken leg will get more sympathy because other people can 'see' that it is broken-I often get told 'Oh but you look so well' and 'Yes, we all get tired-we are getting older after all' I really, really would like to say to these people 'f@#k right off' because they just have not got a clue what we are going through-Constant Chronic pain just totally, totally wears you down-and puts you at your very lowest ebb. BUT and it is a BIG BUT- tomorrow you may wake up and the pain may not be quite so bad-and you may well have a very good day-live for these good days and enjoy them!!! Speak to as many people as you can that do understand your illnessess-there are loads of different ones on HealthUnlocked-have a rant on these sites where people understand just what you are going through, and you will get there - honestly- it does just take time to

adjust-Good Luck with the biopsy, for me it was not that pleasant-but I have been through much worse-and at least I should now eventually find out exactly what is going on with my Liver and hopefully get the right treatment for that (fingers crossed!!!!!) Julie