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[French12Italia]

Hi i have just found this site, Im exhausted with constant errors and no care at Kings college, Im.now on week 2 of radiotherapy and very tired, and just started to find it emotional, then hormone treatment and I reallymdo not want to take hormone treatment..

[ks1966]

Hello. If you didn't need chemotherapy it means that they caught your cancer early. You're lucky there. And hormone therapy is one of the reasons why breast cancer survival rates are so high these days. Be patient and it will pass. Best of luck dear

[Angelmummi]

Hi I found the Radiotherapy more tiring than the Chemo but preserver you will get through it. Take any opportunity to rest and pamper yourself. The hormone treatment isn't that bad. I was on Tamoxifen for 5 years then went on to Letrozole which at the time didn't agree with me so I went back on Tamoxifen.

It is now 11 years since my first diagnosis and I can now look back and weigh the 11 years against 5 months of chemo, 3 weeks of radiotherapy and know it was worth it.

You have to be a bit selfish and concentrate on yourself.

I wish you all the best you will get through this.

[carolinenailsea]

I feel for you. When you are in the middle of treatment it can be very tough and emotionally very difficult. Its so hard to get your head around the diagnosis and treatment, its such a shock. I am sorry your experience with the hospital has not been as good as you had expected, that makes things all the more difficult.

The whole cancer thing can feel like riding a monster and it takes all that you have to hang on. You will come out of the other side but where you are at the moment, I am sure it feels as though its going on forever and there will never be any 'other side'.

Be kind to yourself and don't expect too much of yourself. Its very very hard. Best of luck with the treatment. Caroline xxx

[French12Italia in reply to carolinenailsea]

Thanks 8 days to go then further errors by hospital having a mirena coil they havent arranged removal in time so will have a gap from.radio and hormone starting till its out.. they sat on. Letter for 7 weeks which i never saw about thw coil thwn i asked to see it.. could have been a less stressful journey this far.. thanks for taking the tine to reply

[Nicholjac]

Hi there

Radio is trying the constant day after day but don't do anything else if you can your hospital is in a very busy area so the travel to there everyday must add extra stress it will soon be over and you can start to move on you will however continue to be tired after the radio I didn't realise how fatigued I was until months later when I started to feel better fatigue is the main side effect of radio

As for the hormone tabs you won't know the effects until you start them but you are lucky to have the type that they can give tablets to mine was triple negative so I couldn't have anything so see this as a positive my friend has just had the same treatment and started her hormones and she is fine I am sure you will be they will monitor you and see how you go

I would say all the emotions are coming out and you are ending your treatment soon this creates a bit of anxiety as suddenly everything , the rollercoaster journey suddenly stops and everyone things your ok but you are still recovering and it's hard

Stay focused it will be worth it knowing feeling like this is your body coping ,rest if you can you need it and be kind to yourself

I am 5 years on from what I thought was the end at the time and it takes a good couple of years to feel really back to normal physical function I didn't realise this I was on the go and constantly busy now I take things slow and enjoy doing nothing and enjoying me time

Stay strong the end is worth it

[French12Italia in reply to Nicholjac]

Thanks so much for your reply i am still working, may stop next week for 2 weeks rest

[Hidden]

Go and see someone at the Haven - they are lovely and will give you a bit of the care it sounds like you are missing. Good luck with it.

[French12Italia in reply to Hidden]

I have appointment booked at Haven for August tha ks x

[Debster2016]

Hello there if there’s one thing I can say it is that week 2 of my radiotherapy was one of the (2) lowest points during my 9 months treatment. When I read back over my notes I found I had been advised by the radiotherapy team that if I was going to feel very low it would be during week 2...!! So it is okay to feel very emotional - perhaps more so at this time - and to feel fatigued. My treatment path was surgery, chemo, rads. A good friend who had been thro treatment 10 years before said after the treatment I would be tired. She told me this more than once. My treatment finished a year ago and yes she was right but I am pleased and relieved to say that the fatigue has improved and continues to do so.

Do do be kind to yourself, try and find a pace to life that suits you and your needs at this time. I too had some bad experiences with my hospital and I vented by writing to the ceo. You could also use PALS tho I didn’t. I read and followed the complaints procedure on my hospitals website. It was often really hard to find the energy to do so and I can see now I wasn’t very articulate! I am on tamoxifen now and the hot flushes are a bit up and down but manageable and much better than any of the other treatments!!

You have a lot of support love and hugs from the ladies on here, keep on posting and keep going we are right behind you xxxxx

[French12Italia in reply to Debster2016]

Thank you, many errors, I miss my running as low energy, i have cancelled my next 2 races, may have to stop work for 2 weeks soon

[French12Italia]

Thanks everyone your so kind.. feeling quite alone with it all, the diagnosis is DCIS grade 3, No lymph nodes and onco type test low so no chemo, thankful for this xx was grade 2 on biopsy but had just moved to next layer of breast tissue clear margins, and all removed, emtionL becaise my dear mum passed away with breast cancer 3 years ago..