Well I only had to wait 4 days for the results which was good, however the news was not great. They found an enlarged lymph node on the affected side, and also "something" in my other breast! And the lump is bigger than first thought because it's spiculated (horrible word), i.e. Got little feelers growing out. The nurse drew a picture of a crab...
I ended up being there for 4 hours and had an ultrasound of both breasts and a lymph node biopsy. The biopsy didn't hurt at all thank goodness, and I watched on the screen as the needle poked around in the node.
Felt a bit down after it all. Results on thurs, then op tues 9 th May, 6 whole weeks since diagnosis, am fed up with it now.
Best wishes to you all.
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Phaedra
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I'm so sorry to hear your news, it's always very difficult when it's not as straightforward as we were hoping for.
My tumour was also crab like, my Consultant called it 'a nasty little B' l had a lot of other calcifications which all turned out to be DCIS's of the same type as my main tumour.
The pathology Report said the Breast was 'Very Active'
Originally, I was scheduled for a lumpectomy but with the DCIS's as well, l needed a Mastectomy.
It turned out to be TBNC (Triple Negative) so I then l was followed up with Chemo.
I've done remarkably well & I'm now having 6monthly Bone Infusions, a fairly new protocol for post menopausal women, to try & prevent a recurrence in the bone, there are no other treatments at this time for TNBC
You'll have a better understanding once the results of the biopsy are back & a plan going forward; we'll all be thinking of you & wishing you luck 🍀 You can do it, lots of us have & we're out the other side!
Thank you so much for your kind reply. Glad to hear you are doing well and staying upbeat. Treatments are being developed all the time, which is great, and there are plenty of us going through it aren't there?
Everyone says it's a bit better once surgery is over and all the results are in. Mine is Her2+ so will need chemo, rads and Herceptin.
The surgery is not too bad, I had a pain block which was excellent & took Pain Meds regularly. Exercise is the name of the game, the more you move your arm the better, gently at first but then move it as often as you can. I had shoulder surgery in the past so they were a bit worried about my muscles but I actually did really well.
Hi Phaedra yes waiting can be difficult during which time I got quite distressed trying to understand why the goalposts kept moving, between mammogram result and final diagnosis, but now understand that as each investigation/ scan produces more information the treatment plan adapts to accommodate that.
My surgery was 6 weeks post diagnosis But going private didn't seem to offer any more security let alone speed.
It sounds like your team is being very thorough which is a good thing.
And to go from your MRI concerns to watching the needle biopsy is a great achievement I feel!
Good luck with your surgery, we know what you're going thro so do keep asking questions, there are people with lots of different experiences on here to share.
Hi Phaedra, I am so sorry to hear your news, I am 7 weeks post mastectomy and due to start chemo, followed by radiotherapy and also HER 2. The waiting is the hardest as you found with the MRI and the actuality is never as bad as you imagine. Take each stage at a time, I have used my post op time to get really well in anticipation of the chemo. Get some crop tops and do order your "knitted knocker" see other posts, they are great. On a good note I wore a proper bra with the prosthetic all day yesterday into the evening for the first time and felt confident with how I looked, I have been wearing a bra for a while but never from morning until evening. The body heals remarkably. I shall be thinking of you on the 6th , Lin x
Don't worry! I had BC in 11 out of 12 nodes, and 4 tumours (one of which was over 5cm and attached to the chest wall). I had all the usual treatment including a double mastectomy and recon. 6 years out I am doing FINE! It was a terrible prognosis from the outset but treatments and general info available is improving all the time, and there are many stories like mine. Your biggest challenge from now on is going to be MINDSET. You need to find a way to stay positive and deal with your fears. Allow yourself some bad days but believe you will be ok. Enjoy/make the most of life and don't spoil your peace with worry for the future. Best of luck and lots of hugs. xxxxxxxx
Thank you so much for your replies. It's amazing how everyones story of the same condition is so different, and how people cope with an uncertain outcome, yet come out the other side!
I haven't worked out how to reply individually so forgive my joint message.
Hopefully I'm just having a lumpectomy, but will keep the "knitted knockers" in mind!
Meanwhile I'm trying to eat healthily, having lost 2 and a half stone at a slimming club over the past year, but seem to have developed a nervous desire to eat everything in sight...
It seems not even bc can ruin my appetite.
Thanks again and best wishes with your own journeys
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Lumpectomy and lymph removal 
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