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Osteoporosis journy

Girlguides profile image
10 Replies

Iv been having Prolia injections next will be my 4th.Has anybody been on this injection and made them feel anxious and tired.

I used to play crown green bowls but had to stop.

I'm feeling isolated not going out and miss all the company.

It's good to read other people's stories.

I must overcome this loneliness.

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Girlguides profile image
Girlguides
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10 Replies
hainses profile image
hainses

Hi, I have been on Prolia for almost 10 years and haven't had any major side effects except feeling a bit achy and tired for a few days after each injection. So sorry that you are no longer playing bowls. Could you talk to the people you used to play with and try to work out a way you could just try playing for a short while. I am sure the company would give you a lift. I used to dance alot but osteoporotic changes in my back and knee arthritis made it painful. However now I take painkillers and I make myself go and do what I can, it always makes me feel better to be in company.

Just inviting old friends round for coffee might help or even talking on the telephone.

It can be hard to make the effort when you are feeling down, but it may lift your spirits just to have a good natter.

Take care

Girlguides profile image
Girlguides in reply tohainses

Thank you fir your reply My consultant told ne I was not to bowl because of the bending forward and the bowls weigh 2lb 8oz..

I an going out a bit more as the weather improves.

I used to phone people a lot but I seem to have got out of the habit.

But I am going to try more.

Thank you so much fir replying.

Taje care

Doodlereggie profile image
Doodlereggie

hi Girlguides

I have been on Prolia injections for 2 years now,having had one last week,but have not been aware of any side effects.I did have bad side effects on infusions,I.e. severe neck pain,so changed to the twice yearly Prolia injections at g.p surgery.I am 80 now and feel a bit isolated at times.I have always lived alone quite happily,but over the last few winter months have felt lonely for the first time.I belong to my local church,which helps a lot,as they are very community minded,and have recently found a coffee morning here in Hoddesdon on a Wednesday morning,so I have somewhere to go on at least 3 mornings a week.I can look onto the local bowling club green from my bedroom window,but because of rheumatoid arthritis can’t play,however they are very welcoming if I just want to sit and watch!!

I don’t know if you live in a town or in the country,or if you drive,which can make a big difference.

I suffer from agoraphobia,so have never gone far from home,so am used to quite a small comfort zone.I have recently been attending talking therapy,but I have given it up,just another pressure to conform!

Anyway,please do keep posting on here,as they are a great set of listeners and always make you fell YOU ARE NOT ALONE !!You will come through this.Post again with some more about yourself and I will answer again as time nowadays is not a problem!!Lots of it !!

Girlguides profile image
Girlguides in reply toDoodlereggie

Thank you so much for replying.Very thoughtful of you.

I am going to try much harder to move myself.

You also have your problems.

I can understand you not wanting to go to

The talking therapy as you say another pressure.

It has been a long cold winter I think that is why you are feeling lonely this year.

Take care.

Lyralyra profile image
Lyralyra in reply toGirlguides

I am on Risedronate and I çan totally relate to how you feel. I feel so tired all the time and have cut right back on my activities. Also since taking it I have a painful neck and feel pretty miserable. Today I pushed myself to walk with my walking group and it was good for me but exhausting. I do think we need to keep going and it’s important to meet up with other people.

Girlguides profile image
Girlguides in reply toLyralyra

Thank you fir replying.I did like walking but since on Ptolia I can't walk far due to pain in my upper back.

Thank you I agree its important to meet up with other people. The weather is improving so will do my best to go out

Best of luck to you and take care.

hi I am on Prolia and totally understand how you feel. I have had just one injection and due my second one in March. Have had few side effects other than itchy skin which I think I have overcome by showering with Sulphate free shampoo and shower gel. I do a floor Pilates class once a week but if this is too painful look for a seated Pilates class as very gentle and it’s a good way of meeting other like minded people, there six ladies on that class I did all with OP and they were incredibly encouraging and supportive. I do think the weather has been very cold and very damp which I have found to be very depressing. Do you have a local library , they may have local groups to join or U3A groups which brilliant at encouraging people on their own and certainly coffee mornings. Do take care and good luck.

Girlguides profile image
Girlguides in reply toSoupsandsmoothies

Thank you for replying.I think some of my problem is I've lost 4inches in height due to fractures in my spine, and this maybe causing the pain.

Thanks for the advice about I

Pilates..

I am thinking if I come off Prolia I might not be able to tolerate another medication.

It's very difficult.

Good luck to you.

Take care

Fruitandnutcase profile image
Fruitandnutcase in reply toGirlguides

Welcome to the group Girlguides, I really feel for you. This awful weather really does nothing for your body does it. So cold and damp and it seems to be dragging on for ever.

Have you spoken to anyone about getting your pain under control? If you could sort that out then things would be a lot better for you. Constant pain is very debilitating.

You could also try and see if rheumatology or whoever organised your Prolia could refer you to an osteoporosis physiotherapist - I know my hospital does have that but I was diagnosed during covid and the whole place pretty much closed down.

What other things are happening in your area that you could go to? Is there a U3A group - they cover a lot of different areas. We have a WEA group who organise a series of interesting lectures on all sorts of subject and there are several Woman’s Institute groups on the go too. If you like reading what about joining a book group? Or if you knit what about a ‘knit and natter’ group.

I walk every day and do Pilates twice a week with a really good teacher who is also a physiotherapist but I’m able to get down to floor level and I also go to an art group and yes, it does you good to get out and meet people.

Depending on where you live you might find a Royal Osteoporisis local support group where you could meet other people in a similar situation. Have a look on here, it’s a very good website theros.org.uk/information-a... you could also speak to someone at the ROS about Prolia and your options so it might be worth doing that too.

Good luck and I hope you can find something to really inspire you. Spring is on its way. 🌷🌻🌱

Girlguides profile image
Girlguides in reply toFruitandnutcase

Thank you for your reply and information. I will investigate your recommendations .Once again thank you.

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