HI all. I wrote not long ago asking for advice and people here have been wonderful but I have another couple of question's! I have just read that Denosumab is not advised for people with dental problems. The cancer misdiagnosis affected my teeth very badly and I lost a few and have denture's for my top teeth but also have problems with my lower teeth. I can't go to the Dentist but she does do home visit's. The articles I have read have advised that we need to have dental checks before being given Denosumab .I go on Wednesday afternoon to have a bloodtest to check my calcium and Vitamin D levels so I will check with the Nurse but if anybody here knows of any information I would be grateful. So many mistakes have been made with me that I have ended up with multiple problems so I really don't want any more if the Denosumab injection will be bad for me and potentially, do more damage! I also have what the Gastroenterologist said was a "massive hernia " which they can do nothing about partly because of having a Lobectomy 4 year's ago .My hernia is causing me a lot of pain just now and all I want is for my Dr.s to help me . They don't and it's only because I have begged them for help that I am now being offered Deosumab. I am worried about it though . Thank you for all the previous responses.
All the very best to you all.
Danni
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Osteoporosis in spine
Steroids and osteoporosis 
Prolia and osteoporosis 
Prolia / Denosumab Opinions
That’s prolia which I wouldn’t touch with a 40 ft pole. You can’t just go off it once on it for a while for a start. I researched this a few years back but once the final decision was due, I decided it was just too risky. How bad are your tscores? Have you broken any bones? I was at the osteo last week and she said they are bad drugs for osteoporosis and counterproductive. It seems irresponsible of doctors to be pushing these drugs but many still are.
HI. Thank you so much for your reply and advice. I have 2 fractured vertebrae at the base of my spine and when I had the the DEXA Scan the Radiographer told me that the next 2 up are very thin . There is Osteoporosis in my hip's , shoulders, the upper spine ,Pelvic bones and Osteoarthritis in other areas . I do have T scores but I haven't had that explained yet and when I got the results from the hospital the Radiographer from our main hospital said that there is only 1 vertebral fracture but I have had 3 Xray's which have shown 2 and another Scan which has also shown 2 and a big lump at the base of my spine. Considering it was Radiography who didn't let anybody know for 15 month's that I had a tumour on my right lung, I have no faith in any of them. My teeth are a mess and that all happened when the tumour was ignored. I will speak to the Dr. when I see her. Most of the medic's here have been appalling and my family and friend's are furious with what they see as negligence and very cruel lack of support and treatment which is why I now have so many problems including a " massive " hernia . No , I don't go around suing the NHS, just in case anybody thinks that I am planning to do that!
The pain from the vertebral fracture's is excruciating despite having been given Opioid's, Oramorph and Fentanyl patches ! I still get breakthrough pain and what with that and the Diverticulitis and " massive " 10 cm hernia at the front , the pain back and front is unbearable a lot of the time. I used to be active, walked our dog's twice a day and tutored adult Art Classes and so much more but now I'm in bed every afternoon because of the pain and the worst thing is that I can't have a dog!!
The blood test on Wednesday is to check my Vitamin D levels and calcium and I can't remember what else. The Nurse is doing the blood test but I am going to make an appointment with the Dr. because I really need to speak to her about everything! I must admit to being very depressed just now and as I write this I have awful pain from an abcess in my lower jaw and I need the remains of a tooth taken out there as I had antibiotics for it a month ago and now I need more. I am so grateful to you for your advice the warning and I'm incredibly grateful to everybody who have written with their advice. The forum's here are amazing as I found out with the lung cancer forum.
Please take care and I hope that you have a good Consultant and I am wishing you all the best.
Danni
Oh you poor lady you are dealing with so much. I have diverticulitis too and osteoarthritis everywhere. Have you had any falls?
Thank you for the sympathy but we keep going don't we! I hate to sound like a wimp but I get scared sometimes when the pain is overwhelming. I don't go to the hospital when thing's are really bad and I don't phone the Dr. very often because they have done nothing for me except make thing's worse apart from my Thoracic Consultant who found my lung tumour when I was rushed in with Pneumonia. He came round the next day and asked why I hadn't had anything done 15 month's previously because the tumour was on an Xray that I had then. I told him that I didn't know that I had a tumour! He is my hero! However, the Gastroenterologist rang me about 4 month's ago and he is more than useless! He asked whether I was better because he hadn't spoken to me for 2 year's because of Covid. He hadn't bothered to read my notes before he rang because he then said " Oh! I see that you have a massive hernia! They won't operate on you because of the Lobectomy and the operation would probably take 4 and a half hours! "He told me 2 year's ago that there was a thickening in my Colon which might be a tumour and then did nothing. I was a bit grumpy with him! I could write a book !
However, I know I'm 69 but I still wear dragon tshirt's and have a fairy garden which children and adult's love....my husband hates the ornament's! My head hasn't caught up with my body !
You haven't had an easy time either and I really wish I could wave a magic wand ( sorry !!!) and make you better and everybody else! How long have you had Osteoporosis and how many fracture's do you have? It's so strange but other people have said that they have Diverticulitis and Osteoporosis. I had a fall on the ice about 3 year's ago and fell on my back and it was really painful but I didn't go to the Dr. for about a year when the pain kicked in and the lump in my back got bigger! I begged for an Xray but didn't get one till I begged for the 3rd time ! The list goes on!
Please take care. All the very best,
Danni
To my knowledge I’ve had no fractures since childhood. I do have bone on bone everywhere and degenerative disc disease. My tscores are around -4 so that’s considered severe. I know I have small bones but they may be strong hence no fractures. I use a Walker that can convert to a wheelchair as needed. Today I had fresh X-rays of my shoulders, neck and back. I’ve had both shoulders reconstructed. I can’t stand for any length of time. I think the stomach with the diverticulitis and crohns adds to my whole disability. I can avoid pain by not doing much. I try to walk a bit like 4 minutes which is actually hard for me. Thanks for your kind words. You sound worse off than me.
I got the results of the X-ray and I have a fracture on my back. So much for being positive. That’s changed but can’t see the drugs are the solution. I keep investigating them but they are terrible. I put up the written result from the X-rays. Click on my name and you can see my posts.