osteoporosis help needed: I'm New here after six... - Bone Health

Bone Health
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osteoporosis help needed

I'm New here

after six years of thinking I was managing my osteoporosis, I have been told it is now very bad in my spine. I would like to know if its possible to reverse this by being very very good , diligent and on the case or can I only take the medication now.

does anyone have any experience of raloxifene?

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No, I've not tried that drug. What were you doing to manage it?

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Well that's just it, I sort of forgot and pretty much did nothing, was meant to do diet and load bearing exercise ... been very stressful Time generally

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I have started alendronic acid took my 2nd tablet today going to stay positive and hope I don't get any side effects

Also eating 5 prunes a day calcium and vitamin d kefir

And walking yoga and pillates

Don't think I can do anymore

Still worried re alendronicacid

Good luck to us all

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5 prunes? Is that good? Why?

Yes and good luck to us all

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Hi paddy sse they did a study and prunes helped bone density they said 5 or six prunes a day so I put them out in a small dish in the morning and munch them thru the day

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Prunes it is then! Thanks

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Hi poddy

Rosepetal60 replied to a thread on Raloxifene (Evista) about three months ago. Here is the link : healthunlocked.com/boneheal...

Here is another past thread mentioning Raloxifene: healthunlocked.com/boneheal...

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Hi poddysss

Perhaps it may be a good idea if you give the free helpline at NOS a call. It may do you good to talk this out with a nurse.

"The National Osteoporosis Society provides a helpline service run by nurses with specialist knowledge of osteoporosis and bone health. Call 0808 800 0035."

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Many many thanks... I was just lying in bed now, brooding on what to do and where to turn exactly what I need thanks again

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Hi poddysss,

Do let us know how it goes. The NOS also have lots of information to read ie about all the drugs on offer, exercises, diet and so on. nos.org.uk/about-osteoporosis/

Go for it, give them a call. ;) I have not spoken with them but have heard that those that do, have found the experience really helpful.

Look after yourself. :)

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Thanks

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I tried calling the other day but they were busy, will call again though

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They are often very busy. Keep persevering, you will get through eventually. :)

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Oh I will! Thanks

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I would warn anyone against the use of Prolia. Just checked out the NOS.ORG website and they don't really give a true picture of the side effects of any of these drugs. centerforhealthjournalism.o...

I learnt from bitter experience! Sadly my GP did not give me the correct information, and I agreed (under pressure) to take Prolia. As soon as I arrived home, I checked research articles on the internet, and found that it is one of the worst drugs on offer, and is being pushed on the public without the whole truth being told. Of course by then it was already in my system (via subcutaneous injection), and I have to wait at least 10 months for it to completely leave my body. A far better choice would be to commit to weight-bearing and muscle-strengthening exercises, a good diet with plenty of calcium, magnesium, Vitamins K2 and D3, and regular walking.

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I was offered Prolia and refused as one of the possible side effects is joint pain and I have enough of that anyway, due to being diagnosed with osteoarthritis. On discussing this side effect with my OP doctor, he agreed, although having offered it to me initially, that it was probably not in my best interests to start it and he also commented that on stopping Prolia after 3 years there is the possibility of rebound vertebral fractures occurring.

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Hi didn’t know anything about this. Just been diagnosed and told to take a supplement but no advice as to what or what strength.

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I have replied to you in your thread that you started, Ailsa. By the time you have learned all about self help when being diagnosed with OP you will be able to teach your GP a few things. ;) He really should look at the NOS website at the very least to learn a few basics about the condition.

nos.org.uk/?gclid=CjwKCAiAt...

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You can’t just leave it to drugs! You have to be responsible for the health and well being of your own body and mind. Only you can look after yourself. Eat sensibly and exercise as much as you can and push yourself to walk and move . Try new things, like the prunes, a calcium rich diet, maybe some multi vitamins, massage oils, a new exercise class and give yourself a fighting chance. Joining this site is a great start as lots of ideas. I’m starting on the prunes!

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I think it is difficult to get through because of the time the conversations take. I spoke to them when newly diagnosed and the conversation covered everything I could think of and more, drugs diet exercise and as important as all of those put together how to fit op into a normal(ish) life.

I love prunes now. Pair them with milky porridge for breakfast and double the calcium hit. Or yoghurt if short of time.

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Great idea. Be sure you get enough magnesium, and vitamins K2 and D3 as these are also needed to make (and keep) healthy bones. Now this page is far more encouraging than the wretched Prolia-promoting scams!!!

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I do try to live as healthy as possible - clean food and I have two dogs so walk for miles. I am retiring soon - Easter - so intend to do Pilates and swimming. But we all have to live and a glass of wine or two at the weekend I feel is ok. Thanks for the comments.

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