ROS video about Blood tests

[Verauk]

Does anyone knows if there is a video about this subject? I mean, blood tests that can guide our doctors at the prescription of osteo drugs.

thanks

[Fruitandnutcase]

I’m sure there are tests I know they can check for hyperparathyroidism and might be worth calling or emailing the ROS to ask this question.

There is a page on their site theros.org.uk/information-a... that mentions blood or urine tests but the paper is dated 2019 and specific tests don’t seem to be named.

I also found this medicalnewstoday.com/articl... and I would say I had quite a few, although posdibly not all, of the standard blood tests for osteoporosis done when I was first diagnosed.

You mentioned P1NP and CTX earlier on but I don’t think they appear to be carried out routinely although it would probably be a good thing if they were and you could see if you were making progress or not.

At the moment it seems to me to be a case of ‘You have osteoporosis, take this and we’ll see you in five years (or possibly three years) and that’s it! I was diagnosed exactly five years ago and haven’t had a doctor mention it since. I tend to think that you are pretty much left to muddle around on your own.

I’ll be interested to hear what (if anything) you can find out so keep us posted.

[Cappuccinobaby]

As Fruitandnutcase says get hyperparathyroidism ruled our as a cause od your osteoporosis before embarking on any any drugs. The GP needs to test for calcium, parathyroid hormone, vitamin d and magnesium. The blood needs to be from the same blood draw and the blood for testing the parathyroid hormone MUST be in a tube containing EDTA. When you results come back, if your calcium and parathyroid hormone are abnormal or are both high end normal have a look at hyperparathroidukaction4cha...

There arent any other blood tests as far as I know

[Graceissufficient in reply to Cappuccinobaby]

Do you know if hyperparathyroidism has any symptoms other than bone pain? Ie are there people here who had it but had no idea till they were tested?

[Cappuccinobaby in reply to Graceissufficient]

Other than bone pain hyperparathyroidism cam cause the above

Symptoms

[Graceissufficient in reply to Cappuccinobaby]

Thank you Cappuccino. Definitely worth excluding then even with no bone pain.

[Cappuccinobaby in reply to Graceissufficient]

Definitely

[Graceissufficient in reply to Cappuccinobaby]

Gosh, and I see in some cases has no symptoms and has raised PTH only, calcium is normal - normocalcaemic hyperparathyroidism. But still leads to OP.

Talk about Cinderella diseases - no symptoms, just ticks away till your bones start crumbling.

Not cost effective to screen for it except when you show up with OP and fragility fracture. Not that my GP seemed aware that he should do a blood screen. Hard to remember everything I guess.

[Graceissufficient in reply to Cappuccinobaby]

hyperthyroidism? Think I read they throw a TSH test in, and they should surely test for celiac if the patient is eating gluten and not tested before...

If a patient doesn't go to a rheum, ie below the Frax risk threshokd of 20 per cent it looks as though there are no guidelines requiring blood testing to attempt to establish cause.

Looks as though it is DIY for us fast shrinking, so almost invisible, old ladies.

That might be because no one has done the research to show it would save the country money.

But for us, the invisible, it must be worthwhile doing even if a lottery.

Because a few of us will get lucky and establish a cause.

[Cappuccinobaby in reply to Graceissufficient]

No hyperPARAthyroidism its a set of 4 glands that control calcium levels in your blood. If one or more is faulty it can lead to kidney stones and osteoporosis

[Graceissufficient in reply to Cappuccinobaby]

Hyperthyroidism can be a cause of OP too. Very confusing names I agree.

[Verauk in reply to Cappuccinobaby]

I was tested for PTH, calcium and vit D that was ok, i never had a broke bone despiste some falls. So in my case the turning point was DEXa result of -3,2 in spine. My FRAX test also gave a 7,5% result.

[Cappuccinobaby]

Do you know what your test results were? GP's tend to misunderstand them