ROS SURVEY

[Pinklady45]

The ROS have a survey available on their website which I have just completed. It is worth doing as it may help future generations get better treatment. Please take some time out to do it for them.

[ROSModerator Partner]

Thank you for taking part Pinklady45 , and for sharing with others! Your experiences are really important to help us build a full picture of what it’s like to live with osteoporosis.

For those interested in taking part in the survey, more information can be found on our website at theros.org.uk/survey

[Fruitandnutcase]

Done it Pinklady45, thanks for letting us all know about it.

[Kaarina]

Here is the ink to the survey theros.org.uk/how-you-can-h...

[MollyStark]

Thanks for the info on the survey, will head over and complete it...

[dancingdragons]

I’ve completed it. It’s a comprehensive survey & it’s your chance to have your say on how Osteoporosis has impacted your life and to comment on the state of treatment & support for osteoporosis- warts & all ! Would really help if we all give it shot.

[walk21]

I just did it. It is awful when you think through how many problems this illness causes us

[Kaarina]

I have completed it. I thought it to be quite a good survey better than many of surveys I have started to complete and given up on.

[Fran57]

Completed survey. Thanks. Stay safe,

Fran 😉

[DianeG52]

I tried but when I got to the question ‘How long after you first broke a bone, that you suspect was broken because of your osteoporosis, was your diagnosis?This includes spinal fractures.’

I couldn’t go any further as None of the choices applied as even the question was wrong. I did not break a bone because of osteoporosis!

I and the doctors never even considered osteoporosis.

The break was a horrid fall Nothing to do with weak bones!

My bones deteriorated drastically after developing complex regional pain syndrome as a result of the break.

So, upshot is, I couldn’t continue with the survey. To choose any of the options would be incorrect.

[Met00 in reply to DianeG52]

I had the same problem!

[Kaarina in reply to DianeG52]

Cannot remember how I got round that one when answering the questionnaire as I have not broken a bone either.

[Met00 in reply to Kaarina]

I think the issue was for those of us who have broken a bone but it wasn't an osteoporotic fracture.