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Bone density improvement

Cappuccinobaby profile image
41 Replies

After several years of investigations, I was diagnosed with osteoporosis in August 2020. My t scores were -2.7 in my hip and -2.4 in my Lumber spine. I was prescribed with Alendronic Acid which I refused to take because I was also diagnosed with hypercalcemia Upon further investigations I was diagnosed with hyperparathyroidism. A known cause of osteoporosis I had a parathyroidectomy in June 2021 and began to take a calcium supplement ( if I didn't get 1200mg from my diet ) boron, vit d3 vit k and magnesium. On November 20th this year, I went for another dexa scan and my t scores are now -2.3 at the hip and -1.8 in the Lumber spine. So anyone diagnosed with osteoporosis, should get hyperparathyroidism ruled out as a cause.........its a blood test and once cured could improve your bone density....

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Cappuccinobaby
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41 Replies
FearFracture profile image
FearFracture

Happy to hear your bone density is increasing. When you say that hyperparathyroidism can be diagnosed with a blood test, are you referring to testing PTH?

Cappuccinobaby profile image
Cappuccinobaby in reply toFearFracture

Yes test for calcium vit d3 and pth the 3 work together

MWZ3 profile image
MWZ3

It’s doable with those scores which are borderline. Not so if your scores are well into osteoporosis range like -3. 2 or -4 or worse.

With the thyroid my daughter’s was not diagnosed from the actual test but from the symptoms she kept experiencing.

It is always worthwhile to take vitamin K2, and any others you need like Vitamin D3, magnesium, calcium, etc. Foods that support the bones like yoghurt, leafy greens, bone broth, prunes, etc. Blood tests can identify shortages of vitamin D and others.

Anything we can do to help is worthwhile but I suspect only the ones with borderline tscores can reverse. They should never be given the drugs.

I’ve decided although my scores are bad I won’t take any of the drugs because I am about to turn 78. I likely would if I was much younger. They are awful drugs!

dog45678 profile image
dog45678 in reply toMWZ3

As you are totally motivated not to take the meds and doing things far more naturally,have you or your daughter looked into the Marodyne LiV device. Excellent results in combating and reversing osteoporosis. Wishing you both all the best. It can be done!

MWZ3 profile image
MWZ3 in reply todog45678

My daughter has not been diagnosed with osteoporosis. I’ve all but given up.

Best4now profile image
Best4now in reply todog45678

How many months did you use the Marodyne Liv before having another dexa scan? What were your t-scores, and how long did it take to show an improvement in bone density?

Cappuccinobaby profile image
Cappuccinobaby in reply toMWZ3

Even if you have higher t scores surely any improvement is a good thing. My parathyroid issue was eventually diagnosed from blood tests after other diseases were ruled out because the symptoms are varied and could relate to many issues. I also have an underactive thyroid although I'm told the 2 aren't related, I know lots of people who suffer both. Stay as healthy as you can x

MWZ3 profile image
MWZ3 in reply toCappuccinobaby

I don’t think you can turn it around with high scores. At best, slow it down. I have macular degeneration which is a big concern because I rely on my eyesight so much. Other issues with my back and other health issues impact my mobility and overall quality of life. But to me the eyesight is paramount. All the best to you too.

FearFracture profile image
FearFracture in reply toMWZ3

Within the last say 2 years, I saw a report on using red light therapy to treat macular degeneration--it was on a news show possibly 60 Minutes. You might want to ask your Ophthalmologist about it or do a little research. I remember they said that it's not a permanent fix meaning you have to be treated regularly to maintain the gains, but given that it is your eye sight, it might be worth it.

MWZ3 profile image
MWZ3 in reply toFearFracture

I have wet in right eye and I get a needle in the eye for that which happens again tomorrow. I’ve heard of red light therapy. Thanks for caring. Funnily, the food for macular degeneration is similar to the eyes.

HeronNS profile image
HeronNS in reply toMWZ3

Just to clarify, parathyroids have nothing really to do with thyroid, except that they are positioned on the thyroid gland. So a thyroid test would not reveal anything about parathyroid function. You may have meant parathyroid, but it is important to be clear exactly which gland(s) being referred to. Especially as the thyroid itself can have an effect on bone density. Two different problems, same result from point of view of patient - thinning bones - and different treatment required. :)

MWZ3 profile image
MWZ3 in reply toHeronNS

I doubt I have any of those conditions so never really explored them. I only know about the thyroid from my daughter and that the test does not work for many women. They go untreated because they can’t get a number on the blood test. She had to really find a doctor who would believe her via her symptoms. The meds work for her hence the proof needed to show that she does indeed have hyperthyroidism.

HeronNS profile image
HeronNS in reply toMWZ3

So, continuing my effort to clarify - she has hyperthyroidism, not hyperparathyroidism? Her condition can affect bone density, but it is not the same as hyperparathyroidism so the tests and treatment are different. I don't mean to be niggling, but as the thread was discussing parathyroid glands I thought it important to make sure the distinction was clear. Both are very important issues to be considered when "secondary causes of osteoporosis" are being investigated. Thank you for bringing it up.

MWZ3 profile image
MWZ3 in reply toHeronNS

I know next to nothing sorry I wasn’t trying to say I knew anything about the parathyroid I was replying to fear fracture who mentioned the test. That’s the only experience I’ve had via my daughter and the test not working for her and many other women.

Go for it as it’s not my area as I’ve never had anything like that so never investigated it. My reply was in connection with the other parts of that post.

I’m sure your explanation will help a lot of women. Just not my area!

HeronNS profile image
HeronNS in reply toMWZ3

Very good - but I guess my comment actually illustrated the need for clarification as I obviously missed something.... my bad, but I guess it's really all good! Cheers!

Cappuccinobaby profile image
Cappuccinobaby in reply toMWZ3

Having gad problems with both the thyroid and Para thyroid, could I suggest you and daughter ask your GP to check your calcium levels and parathyroid hormone levels as hyperPARA thyroidism is KNOWN to cause osteoporosis. Its a simple blood test and could prevent if not somewhat reverse the bone damage. Surely its worth a try......

MWZ3 profile image
MWZ3 in reply toCappuccinobaby

yes they are checked as far as I know but I will ask and emphasise those names.

Justme16 profile image
Justme16 in reply toMWZ3

Disagree. My scores were in the -3s and I reversed the natural way. Mostly by weight lifting I think.

MWZ3 profile image
MWZ3 in reply toJustme16

That’s great and good to hear. I suspected it might be doable up to 3 but not close to -4. Usually, there’s some lower with others a bit better. My worst is -5 and some lower. They do an average which brings that number down. If you were able to take HRT which I wasn’t because of two sisters with breast cancer at the time and now wonder if it’s too late. I do have a friend in the UK who is taking it and insisting on taking it after 60. All the best.

caja61 profile image
caja61 in reply toJustme16

That's good to hear. My lumbar spine was -3.6. Had a parathyroid op 18 months ago, now trying to get a repeat Dexa. Previous breast cancer so can't take HRT. What improvement did you see in your scores?

Justme16 profile image
Justme16 in reply tocaja61

My previous username was Justme13. I have it all detailed there. Had to change names due to password issues.

Fran57 profile image
Fran57

So good to hear your news!! Well done!!

As you know, I was in the same situation, in that I had hyperparathyroidism too and had the parathyroidectomy. I also do not wish to take the medication suggested.

Unfortunately, my second Dexa scan showed a slight worsening of my T scores but I don’t take any supplements, (other than prunes!), so maybe I should 😉

I also think that our bones are likely to get worse as we age so, although I was disappointed not to see an amazing change, I was so glad I researched hyperparathyroidism, because that needed to be sorted.

Stay safe and well,

Fran 😊

Cappuccinobaby profile image
Cappuccinobaby in reply toFran57

Sorry your t scores aren't as good as you would like. I try and get 1200mg calcium daily ( using a supplement if necessary) I have 1000iu vit d3, 600mg magnesium, 3mg boron and 50iu vit k ( mk7 ) but check with your GP if you are on blood thinners before taking vit k ) I also walk 5 miles a day. Still hoping to improve further. Hope you get some improvement in the future x

Fran57 profile image
Fran57 in reply toCappuccinobaby

Thank you! 😉

I usually would do my 10,000 steps most days, but the paths are a bit icy at the moment… so it might defeat the object 🚑 !🤦‍♀️

Fran 😷

HeronNS profile image
HeronNS in reply toFran57

Oh, and you probably know, but for sake of clarity, Cappuccinobaby is referring to Vitamin K2.

Cappuccinobaby profile image
Cappuccinobaby in reply toHeronNS

Yes sorry vit k 2

Cappuccinobaby profile image
Cappuccinobaby in reply toFran57

Invest in good walking boots with a decent tread x

HeronNS profile image
HeronNS in reply toFran57

Have a look at my story for other ideas which might give you the boost you need.

healthunlocked.com/pmrgcauk...

Fran57 profile image
Fran57 in reply toHeronNS

Thanks very much for your help!

Fran 😉

Cappuccinobaby profile image
Cappuccinobaby in reply toHeronNS

Thank you. An interesting read. I'd also advise anyone diagnosed with osteoporosis or osteopenia to have primary hyperparathyroidism ruled out.....

Fruitandnutcase profile image
Fruitandnutcase

I’m so pleased to hear your good news. You must be delighted with your scores 😊

Cappuccinobaby profile image
Cappuccinobaby in reply toFruitandnutcase

I am thank you

Ruth-S profile image
Ruth-S

That's great news! Thank you for sharing I wondered what brand of boron you take? I get tired of eating 6 prunes daily. 🙂

HeronNS profile image
HeronNS in reply toRuth-S

By mistake my source of calcium supplements ordered the version without boron for me in spite of my taking in an empty bottle so they could get it right. I got a boron supplement from them, and it is a very small dose, only 3 mg a day, and unfortunately in a fairly large round tablet which I find a bit hard to swallow. Boron is available in other foods besides prunes but, like you, I like to hedge my bets and take a supplement! So I can't make a brand recommendation, but I do suggest looking for a caplet shape if possible.

Fran57 profile image
Fran57 in reply toRuth-S

I hated prunes (🤣), but I just put them in my porridge and now I’m used to them.

Also, and it could be a complete coincidence, I never used to be able to have wheat, but I can (since having the prunes) now eat wholemeal bread… a real bonus for me!

Stay safe,

Fran 😉

Cappuccinobaby profile image
Cappuccinobaby in reply toRuth-S

I use Holland and Barratt x

FearFracture profile image
FearFracture in reply toRuth-S

I am getting really tired of eating 6 prunes a day, too. I'm considering switching from prunes to taking a boron supplement and calling it good enough but I am waiting for my most recent DEXA results (scan was done yesterday afternoon) before I adjust anything.

HeronNS profile image
HeronNS in reply toFearFracture

Well it is generally speaking better to get things from food. It's not just boron you get from certain foods, but other micronutrients. I happen to like prunes but not going to eat 5 or 6 a day (I eat 3). However boron is in many other fruits and some vegetables. And when we eat those things we also get the benefit of other vitamins and minerals present. As we get older it is harder for us to absorb many micronutrients, which is the main reason I also supplement.

Cappuccinobaby profile image
Cappuccinobaby in reply toHeronNS

There's boron in a lot of food but you need to eat lots inorder to get what you get from a single 3mg supplement sadly

Sowen59 profile image
Sowen59

that’s great news ….🎉🎉 so pleased to hear an improvement…..my fingers are crossed it continues xxx

Cappuccinobaby profile image
Cappuccinobaby in reply toSowen59

Thank you, mine are crossed too 😊

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