I have been to the hospital today to see a new consultant who is a specialist in non-specific and unexplained lung disease (think" House"!) . the diagnosis he has given me is Non Specific Interstitial Pneumonitus and he seems quite optimistic...although as he says there's no guarantees...but there never is!
He has started me on lots of drugs which hopefully will control my condition, although it cannot be reversed or cured. I think the next few months will be challenging as I have to ease onto one regime whilst gradually coming off the steroids. I will have to have regular lung function and blood tests. This all means lots of too-ing and fro-ing to Wythenshawe (Manchester, about an hour away if traffic behaves!).
both the doc and the specialist nurse were encouraging and positive and I think I will get along with both of them, a bonus as I will be spending a lot of time in their care.
I'm feeling shattered but a bit calmer in myself as was wondering what they were going to say and how bad it would be.....
we are thinking of booking a holiday cottage for half term...think my lads deserve a week off...hubby just needs to check his holidays...but hopefully we'll be off to Shropshire.
My eldest son, who has had a day off today has done loads of jobs for me, including ironing and cooking tea...how spoiled am I???
hope y'all are breathing easy,