Myocarditis

[kipper1958]

My partner was diagnosed with Myocarditis in 2018 and still suffers from the legacy it has left behind. It is not like a 24-hour bug you recover from, but a condition you must live with. He has palpitations which usually happen when he is just sitting down, these are now thankfully under control by taking a daily magnesium supplement, which his consultant recommended and he uses a cool pad from the freezer on his neck to shock the Vagus nerve which also stops the palpitations. Chilli and caffeine seem to have triggered these events, so he now avoids these in his diet.

[HHH2017]

Sorry to hear your partner is still suffering. I had myocarditis with pericarditis in 2017 and it has permanently changed my life.

I now have a 'new normal' which Ive now accepted and so feel much more positive these days.

I used to love walking in the lake district and reaching the tops of peaks now even going up a slight incline brings on chest pain and breathlessness. But I thoroughly enjoy playing with my grandchildren and went Canadian canoeing with hubby at the weekend which was great fun. Swimming is also a good gentle exercise I enjoy.

I hope your partner can find nice things to enjoy that help fitness and positivity for you both going forward. For some of us this is a condition that is long term and we have to find ways to live with it, not many people or medics understand this. Best wishes to you both.

[kipper1958 in reply to HHH2017]

Thank you for your reply and you r positive imput.

[fishonabike]

I am sorry to hear of your partner's ongoing issue - I hope that you are both able to adapt to the limits imposed by this and that you can con time to enjoy many pleasures in the years to come

unfortunately more of us are now living with the effects of poorly understood ongoing conditions with little or no effective treatment - thank you for sharing some of your coping strategies, I'm sure this will be helpful to others