Conns disease : I have being... - British Heart Fou...

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Conns disease

Sony1944 profile image
3 Replies

I have being diagnosed with Conns Diease. 2 benign tumours on my kidneys.

initially I was prescribed Spriolactone to reduce aldosterone. Potassium levels became very high. Also had diarrhoea, wheezing chest, and fatigue. Felt very poorly.

Had blood test and consultant stopped the Spriolactone. Some 4-6 weeks after stopping these tablets I feel fantastic, full of energy, getting up,on a morning and not feeling tired is amazing.

The consultant, after telephone follow up, has prescribed Eplereone, to reduce aldosterone.

Has anybody else been prescribed either of these tablets. I am very reluctant to start taking Eplerone as I feel so well.

I am 80 years old, very active. My diagnosis was made after a MRI scan, and due to irregular Blood Pressure.

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Sony1944
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BeKind28- profile image
BeKind28-

Hello :-)

I am so sorry about your diagnosis but glad you are feeling better coming of Spriolactone

I have not been on Eplereone but I hope it is suiting you better and you are tolerating it well :-) x

Sony1944 profile image
Sony1944 in reply to BeKind28-

Thank you for your kind thoughts.

BeKind28- profile image
BeKind28- in reply to Sony1944

:-) x

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